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Spinal Roundtable Discuss Shipping off medical reports today! in the General Discussion forums; The third recommendation came in today, and unfortunately, all three have been a little different! Dr. Clavel recommends M6s at ...

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  #11  
Old 12-20-2010, 04:03 PM
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The third recommendation came in today, and unfortunately, all three have been a little different!
Dr. Clavel recommends M6s at L4-5, L5-S1
Dr. Boeree recommends M6 at L4-5, optional to do L3-4 with an M6, and an anterior fusion with a STALIF cage at L5-S1
Dr. Bertagnoli recommends 3 levels of ADR L3-S1! (Type not indicated yet)

The high probability of having additional surgery done in the future in the same area (for L3-4) is risky due to scarring. So do I have an ADR in an area now when it isn't as bad, but is likely will be? I definitely agree with Dr Boeree's reasoning for fusion at the lowest level.... big question is what to do with L3-4.

This is not easy! Any educated thoughts?
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Joey Sue - 45 years old
Severe DDD L4-5,L5-S1, mod neural foramen narrowing, osteophytes.
Mod facet degen at L5-S1, but only mild degen at L4-5.
Small annular tear and mild DDD L3-4 (unchanged and holding steady for 2 years)
Mild DDD L2-3
Hybrid 9/28/2011: STALIF TT interbody fusion at L5-S1 and M6-L ADR L4/5 with Nick Boeree, UK
http://healthyback2011.blogspot.com/

Last edited by Jstuckey; 12-20-2010 at 04:19 PM. Reason: wanted to add more info
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  #12  
Old 12-20-2010, 09:42 PM
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You might try ADCT with Bertagnoli instead of ADR for L3/4. It's a way to split the difference between surgery now when it's borderline and hoping that it never gets bad enough to need surgery. It's an option for any surgeon but I'm only sure of Prospine willingness to do it.
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Laura - L5S1 Charitee
C5/6 and 6/7 Prodisc C
Facet problems L4-S1
Knee, Shoulder, Toe, Finger, Elbow Problems

Jim - no spine problem but lots of other fun medical challenges

"There are many Annapurnas in the lives of men" Maurice Herzog
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  #13  
Old 12-21-2010, 08:21 AM
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Quote:
Originally Posted by Jstuckey View Post
The high probability of having additional surgery done in the future in the same area (for L3-4) is risky due to scarring. So do I have an ADR in an area now when it isn't as bad, but is likely will be?
Joey Sue,

You are making me feel really really lucky. Five of the six surgeons I consulted recommended the exact same procedure, which of course made the decision easy.

I can think of all kinds of pro's and con's for you to go either way, and I truly don't have a clue as to which direction is medically wisest. I do have a question though; As these are all three European surgeons, two of which use non-FDA approved devices, I'm betting that you're paying out of pocket. You have the cash on hand to incur the expenses of one European surgery. If/when a second surgery becomes necessary will you be in a position to cover that one out of pocket as well?

Good luck, Jeff
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C4/5 - ACDF in 2000
C5/6 - ACDF in 2002
C3/4 & C6/7 - M6 ADR, Nov 2009, Barcelona
Conceded defeat to a manifestly disingenuous BCBS-TX in my quest for reimbursement, Jan 2011
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  #14  
Old 12-21-2010, 08:53 AM
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That's what I'm thinking... A second surgery (which sounds inevitable) is not only medically risky in the same area (moving major arteries around the scar tissue), but it's so much more expensive to go in a second time rather than take care of it now. I wouldn't say I have the cash on hand, but am fairly certain I can get a loan for the majority of it, and sell a few toys for the rest. I keep telling myself, "It's a car.... it's just a car. People buy cars for this price all the time!" But I'll be driving my "car" for a lifetime! $32-$40K. But, finding that huge chunk of money again in a few years does not fit into my finances, when we have 3 college-age children that will then be getting married. Our real plans involve paying for those finer things in life, not medical bills, so a one time shot is about all I can stomach when it comes to money.

BTW, for anyone following this... just got the quote this morning from Dr Bertagnoli, and although he is a well respected surgeon, he is out of my league on price. Even if I insisted on using him medically, I would have no choice but to do without... $68,000 for 3 level ADR. Eick. If you are fortunate enough to have the funds, I do believe he is one of the best.
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Joey Sue - 45 years old
Severe DDD L4-5,L5-S1, mod neural foramen narrowing, osteophytes.
Mod facet degen at L5-S1, but only mild degen at L4-5.
Small annular tear and mild DDD L3-4 (unchanged and holding steady for 2 years)
Mild DDD L2-3
Hybrid 9/28/2011: STALIF TT interbody fusion at L5-S1 and M6-L ADR L4/5 with Nick Boeree, UK
http://healthyback2011.blogspot.com/
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Old 12-21-2010, 10:28 PM
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Sorry... I misquoted a bit (my euro conversion was off). The quote from Dr Bertagnoli was $57,300. Still out of my league!
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Joey Sue - 45 years old
Severe DDD L4-5,L5-S1, mod neural foramen narrowing, osteophytes.
Mod facet degen at L5-S1, but only mild degen at L4-5.
Small annular tear and mild DDD L3-4 (unchanged and holding steady for 2 years)
Mild DDD L2-3
Hybrid 9/28/2011: STALIF TT interbody fusion at L5-S1 and M6-L ADR L4/5 with Nick Boeree, UK
http://healthyback2011.blogspot.com/
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  #16  
Old 06-08-2011, 08:04 PM
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Hi Joey Sue -

I just checked back in and noticed your posts on Jeff's M6 surgial outcome thread. It sounds like you made a lot of progress exploring a complex situation and I'm glad to hear that you've now got a plan and schedule.

I think you'll find Nick Boeree to be as thoughtful and conscientious in person as he is when consulting by phone or email. And September's a wonderful time of year to be in Hampshire so getting a house seems like a great idea.

I hope you'll keep us posted and in the meantime I'm wishing you the best for the Summer here. If you have any questions or I can be of help in any way don't hesitate to send me a message.

Best,
Tyler
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2010 Cycling accident tripped up an old motorcycle injury
C5-6 and C6-7 disc degeneration, foraminal compromise with indentation of nerve roots causing arm pain and weakness
Aug-27-2010: 2-level ADR (C5-6 & C6-7) with Spinal Kinetics's M6-C by Nick Boeree, Nuffield Wessex Hosp., Eastleigh, UK
Completely off of pain meds since a few days post-op and symptom-free; have returned to cycling, climbing and all other activities (but staying off the motorcycle)
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  #17  
Old 06-09-2011, 08:55 AM
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Thanks Tyler. Can't wait to join the M6ers group! Doing pretty well at the moment, so not too much to talk about, other than the usual aches and pains.... and that discussion gets boring fast! I will definitely ramp up my discussions in Sep. when this adventure truly gets rolling. Thanks for your offer of help. It is appreciated.
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Joey Sue - 45 years old
Severe DDD L4-5,L5-S1, mod neural foramen narrowing, osteophytes.
Mod facet degen at L5-S1, but only mild degen at L4-5.
Small annular tear and mild DDD L3-4 (unchanged and holding steady for 2 years)
Mild DDD L2-3
Hybrid 9/28/2011: STALIF TT interbody fusion at L5-S1 and M6-L ADR L4/5 with Nick Boeree, UK
http://healthyback2011.blogspot.com/
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  #18  
Old 08-13-2011, 09:02 PM
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Hi Joey Sue,

I'm so sorry that I haven't replied sooner, but I haven't been on the forum for quite awhile. I answered your PM a little while ago.

Someone asked about Dr. Pimenta and his cost. He was $35K US, and it didn't seem to matter how many levels, three or four. While we had a different plan than what we ended up with once he went in during surgery, the price never varied. And that included spending five days more in the hospital than expected because I had a bad case of constipation. I couldn't leave until I 'went' . It had more to do with how I went into the surgery, and way too much pain medication for months beforehand.

I believe that one or two levels is much less, but depends on the case.

I'm very happy that you have come up with a good plan, JS.

I also had a significant slip between L4/5/S1 which complicated things. My husband was able to stay in my private room the whole time, which greatly lessened our hotel bill. He went out for meals, but other than that, our costs were minimal in that area. The slip did not show up on any of my images....over half a dozen surgeons & radiologists had seen them and for some reason, only surgery itself showed the real issue.

If anyone has any questions about my very successful experience, please contact me both by PM and email. I'll try to check in more often!
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C3/4-5/6- Mod. ant., severe posterior bulging w. nerve root compression. Sev. narrowing of spinal canal with cord compression.

L4/5/S1- Mod. narrowing, bulging disc, significant hypertrophy of flava lig.

Highly allergic to all metals.

NEW: 3/16/2010: Successful surgery in Brazil w. Dr. Pimenta; Nuvasive NeoDisc at C5/6, and XLIF & ALIF at L4/5/S1 w. PEEK cages. No rods, screws, plates. Non-metal lumbar ADR not available at present time, so went with fusion.
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