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  #1  
Old 06-16-2018, 02:05 PM
marcus60486 marcus60486 is offline
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Join Date: Jun 2018
Posts: 13
Default My story. Strange symptoms, need suggestions.

My situation is interesting, concerning and uncomfortable and I'd like some input, as my doctor has been useless...

Male: 31 years old.

Medication: None

Situation:

- 7 years ago: injured my neck in a car accident and have bulged discs, arthritis and disc degeneration. I have constant pain.

- 5 years ago: work injury and blew out lumbar discs L4/L5 and L5/L6 (Yes, I have an extra) and have significant degenerative disc disease and have constant pain.

- 1 year ago: car accident and injured my thoracic spine (T7), pain believed to be from interspinous ligament. Car accident aggravated my lumbar back injury as well.


Symptoms:

- Tingling: Groin, testicles, between buttocks. Periodic for 10-30 seconds but happens many times a day.
- Tingling/Numbness: Both feet. Random, does not happen every day. Have also had numbness on hamstring area.
- Excessive Sweating: Buttocks, back, forehead. Sweating triggered by heat, activity, stress. Sometimes so bad that my clothes will be completely drenched.
- Hot Flashes: Random hot flashes that produce full body excessive sweating.


Tests:

- Thyroid and urine test for pituitary tumour. Negative.
- General blood tests that were fine.
- MRI of low back shows degeneration at L4/5 and L5/L6.
- CT of neck shows degeneration at C5/6 and C6/7.


Time Line:

- The symptoms listed above started RIGHT after the most recent car accident (May 23, 2017) and aggravation of injuries, I think it is too coincidental to think they are unrelated. These symptoms were NEVER an issue prior to this car accident.

- I have been otherwise healthy aside from back/neck pain prior to these symptoms appearing.


Thoughts:

- Has anyone ever had or heard of something like this happen after an injury?
- I have heard of people having excessive sweating issues in random and strange areas with spine injuries or after surgery. Is this possibly the problem for me and could it be resolved with disc replacement??
- Any other thoughts or suggestions on how to stop this or deal with it, especially the sweating issue?


Dr.Clavel Suggestion

- Replacement at L4/5, L5/6
- Replacement at C5/6, C6/7

Last edited by marcus60486; 06-21-2018 at 12:01 PM.
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  #2  
Old 06-18-2018, 06:25 PM
LHerm LHerm is offline
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Join Date: Mar 2017
Posts: 22
Default

Have your doctor (or new doctor) order and EMG.
__________________
1. Lumbar Disc herniation - Jan 2016
2. SED - Selective Endoscopic Discectomy - April 2016
Re-herniation 3 weeks later.
3. Chose LP-ESP disc as #1 choice.
4. Found Dr. Biren Desai and engaged in months of email writing at a doctor level to gauge his expertise.
He preserves (sews) the anterior longitutional ligmant and uses adhesion barrier.
5. Sept 6, 2017 - One level lumbar - cost $15,500
6. BCBS International reimbursed me.
7. 6 months later - Full activity. Doing great!
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  #3  
Old 06-20-2018, 12:04 PM
marcus60486 marcus60486 is offline
Junior Member
 
Join Date: Jun 2018
Posts: 13
Default

Thank you LHerm.
My doctor has ordered an EMG but I do not have an appointment date yet. Until then....trying to figure out a way to deal with these symptoms, especially the sweating.
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #4  
Old 06-21-2018, 09:13 AM
GKTM300 GKTM300 is offline
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Join Date: Dec 2015
Posts: 273
Default

withoit losting films its hard to tell bro even us internet drs need mris lmao i hope you find recover if i were u i would send my mri to bertagnoli n he will diagnose u for free also he is recognized as the best thru spinesurgury associations couldnt hurt
__________________
12/22/04 blew L4-5 and L5-S1 out lifting wrong
4/1/05 back to work thanks to Oxy
11/11/13 hurt back lifting again
6/6/15 last of many MRI L4-5 medium paracentral bulge with juice leaking and mid to left bulge on L5-S1
No invasive procedures except steroid shots that did nothing n hurt wicked bad
9/24/2016 Adr surgery Bertagnoli>1 year doing great
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  #5  
Old 06-21-2018, 12:00 PM
marcus60486 marcus60486 is offline
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Join Date: Jun 2018
Posts: 13
Default

Thanks GKTM300.

I am scheduled for MRI's on Saturday and will then post the images.
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #6  
Old 06-21-2018, 01:35 PM
annapurna annapurna is offline
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Join Date: Dec 2004
Posts: 1,668
Default

The sweating and hot flashes can be reaction to pain and inflammation. If you're in chronic pain, you can have systemic reactions to it that manifests like that.

With the caveat that I'm an engineer and not a medical professional, I'd suggest that if a thorough set of blood tests doesn't show up with anything odd, concentrate on the spinal problems and see if everything else resolves after you get those addressed. I don't know where in BC you are but there's a ND that Laura and I see in Seattle that's pointed us towards an online company for the blood tests and then was willing to help interpret the results by phone. That might be a way to put your concerns to rest even if you're struggling with your local docs. PM me if you'd like the ND's contact info.
__________________
Laura - L5S1 Charitee
C5/6 and 6/7 Prodisc C
Facet problems L4-S1
General joint hypermobility

Jim - C4/5, C5/6, L4/5 disk bulges and facet damage, L4/5 disk tears, currently using regenerative medicine to address

"There are many Annapurnas in the lives of men" Maurice Herzog
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  #7  
Old 06-22-2018, 02:27 PM
marcus60486 marcus60486 is offline
Junior Member
 
Join Date: Jun 2018
Posts: 13
Default

Annapurna:

Thank you for the response. I too believe that these symptoms are a systemic result of pain and nerve related issues...temperature regulation, sweating, tingling, numbness...all these things are controlled by the nervous system, so it makes sense to me.

My symptoms are strange and not typical back symptoms, so my doctor has been a bit dumbfounded. He did say yesterday that although he has not seen this before, he does believe that all this is spine related and is eagerly awaiting MRI's.

I will send you a PM for the info on the ND you have been seeing.

Thank you
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #8  
Old 06-23-2018, 11:11 PM
marcus60486 marcus60486 is offline
Junior Member
 
Join Date: Jun 2018
Posts: 13
Default MRI Update- July 23, 2018

Hello- So I went and had MRI's done today of my neck and back...

I can't say I'm a doctor and don't know a whole lot about MRI's, but here are a couple screen shots that I took...

Let me know your thoughts, if you are so inclined.

Thanks!
Attached Images
File Type: jpg C-Spine (2) June 23.jpg (30.4 KB, 25 views)
File Type: jpg IMG_4663.jpg (85.6 KB, 26 views)
File Type: jpg LSpine June 23.jpg (83.6 KB, 31 views)
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #9  
Old 06-25-2018, 07:10 PM
marcus60486 marcus60486 is offline
Junior Member
 
Join Date: Jun 2018
Posts: 13
Default MRI done and new diagnosis

I got a MRI of my neck and back on June 23, 2018.

The most recent surgical recommendation is as follows:

Diagnosis:

1. Severe cervical disc protrusion at level C5/6 left and C6/7 media/right with narrowing and compression of the left nerve root C5/6 and C6/7 right
2. Severe disc degeneration L3/4 and L4/5 in lumbar spine.

Surgical Recommendation:

1. Nerve Decompression and Artificial Disc Replacement at level C5/6 and C6/7
2. Lumbar Artificial Disc Replacement at level L3/4 and L4/5
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #10  
Old 06-26-2018, 05:45 PM
marcus60486 marcus60486 is offline
Junior Member
 
Join Date: Jun 2018
Posts: 13
Default

Alright, progress is being made!

I've got all my imaging, reports and questionnaires done and sent off for consultation to a handful of the European surgeons.

Will update further when additional opinions come in.

As far as discs are concerned:

#1 choice is are the ESP discs for both my neck and back
#2 choice is the M6
#3 choice is the Activ-L
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
Reply With Quote
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