I am about to start a writing campaign which will send letters to all levels of government local, state and federal in order to try to get insurance companies to cover this surgery.
I am also contacting a lawyer who deals with problems with insurance compaies like the one's we all have.

If anyone has any letters that they have written, it would be cool if you could post them so we can get an idea of what you said and help everyone who is writing letters

The fact that I can't get my surgeyr has put a huge strain on my life and well as my families. It is unfair and it has to stop.

Jason, great idea! I posted mine to BCBS here, some others have as well. Nichole did a great deal of work on this recently as well...so many people have it's a shame - but also an inspiration!