Susan,
Yes, I am very much awake after reading your post!
Pls search for "tarlov cyst" across this board; you may want to speak with some other folks that have been dealing with these. I can share other research I am doing in this area; but let's catch up in the coming week. My comments on these topics hint at some of the research.
There are many nice, helpful & smart people in this community. I hope we can help you! I encourage you and the other new members to politely email and PM people that may be able to help you.
Talk to you soon.