I have two comments:
First, the hospital fees seem totally outrageous to me! I know that someone has suggested telling the hospital you are going to Germany, if they can not bring their fees more in line with Germany. It's free to negotiate and to ask for a reduction. They do seem totally egregious to me. What did others do?
Second, and this is out in left field. How about contacting Oprah's show and asking them if they would help you financially in exchange for your/our story: (i) hopes and dreams with insurance companies that suck; (ii) appeal after appeal with insurance, (iii) the procedure itself and all procedures that preceded it - the path to surgery, (iv) the final outcome. Tying it all in with how insurance in the US is not adequate nor does it provide reasonable care. This would be a great show and the story needs to be told!!!
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