Smiler,
I’m sorry your situation is not easily diagnosed and resolved. The sad truth is your treatment falls on your GP’s shoulders. He/she should be asking you many, many questions about your condition, but that goes both ways! If he/she does not have the skills to screen & test you for systemic infections, perhaps they can refer you to a hematologist, epidemiologist or a rheumatologist.
As a layperson, and on nothing more than a hunch, I suggest you read up on systemic infections that may be creating an inflammatory condition. Unfortunately, these are complicated conditions and are difficult to diagnose and treat.
Here are a few relevant discussions that you may find useful:
Fibromyalgia & ADR
http://adrsupport.org/eve/forums/a/tpc/f/7701036081/m/6...761032612#5761032612
Extreme fatigue. Please help
http://adrsupport.org/eve/forums/a/tpc/f/7701036081/m/9...821003012#5821003012
Lyme Disease and Discogenic Pain
http://adrsupport.org/eve/forums/a/tpc/f/7701036081/m/8...151045102#8151045102
By the way, I am happy to help anyone like you avoid surgery, as it is a big commitment and not right for everyone. Good luck with your research, please keep us posted on your challenging journey.