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Old 04-24-2016, 01:19 PM
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Cynlite Cynlite is offline
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Join Date: Mar 2015
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I was just reviewing your posts again. I sure hope you are feeling a little bit better now. Your story is very similar to what I have experienced here. I know others in our state that have also struggled with getting decent care. I think our options are not the best in the country here and that includes The Barrow Institute which was just a big frustrating experience for me. I waited three months to get an appointment only to find that the office misinformed me on the surgeon using Mobi-C's. I vented all of this in my threads last year. My insurance won't let me go out of county so, unless I can change that in the future, I'm pretty limited in my care.

I reached out to many neurosurgeons in the U.S. and Europe last year. I never did get a consensus.

Down the road, you could look into getting ADR's next to your fusion provided your facet joints are not in too bad a shape. I know several people online who have had a fusion replaced with an ADR. When the body does not fuse properly, the surgeons can replace it. Theoretically, if you get an ADR next to a fusion, it will stop the degeneration of the adjacent discs so I've read.

I was just asking a patient yesterday if Dr. Clavel in Spain could replace a solid fusion. I thought it could not be done (and perhaps it can't) but, he seemed to think it could be done and he's over in Spain right now. If I can proceed with my surgery plans in Europe, I'll be sure to talk to Dr. Clavel about this because one of my levels autofused already and I'm pretty sure it's solid. It's a long shot I know.

I sure hope that you are feeling better and that you will have better options in your future. I know how hard it is to live with these problems and pain. Many others here do as well. Hang in there and don't give up.
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2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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