Welcome Mbeth,
We have all experienced anxiety throughout our ADR journey. It is important that you continue to gather information and ask questions. Try not to be intimidated my medical practitioners and/or insurance companies. Many procedures not finally approved by the FDA have been and are in use in Europe with positive results. As your case progresses, visit this forum and share your thoughts, feelings, and questions. We all understand your situation and empathize with you.
Smiles