Thank you for the message
I have been seeing specialists and trying to get well for the better part of 3 decades so have been tested for everything multiple times, including Lyme. Always negative. Have been on years of antibiotics too, including IV. I felt a little better after yrs of taking them, but I am now 99% sure it is because the meds were acting on gut bacteria. I think the gut microbiome and dysbiosis is to blame for almost every chronic disease known to man. I am finally having some success with fecal transplants.
I believe that the reason the spine degenerates faster with these diseases, is because of the intense inflammation that results from gut dysbiosis. The inflammation damages the ligaments and soft tissues over time.
They have been investigating something called neck-stomach syndrome...the vagus nerve in the upper cervical spine controls a lot.
Not sure if you are familiar with the concept of fecal transplants - if not, it will blow your mind.
It is just so frustrating to finally be a little better after decades of torture, only to have it be ruined by neck pain which I caused myself. And knowing it will only get worse. And the money down the drain....sorry, it is so hard knowing you cannot trust yourself and that you made the most stupid decisions out of sheer desperation.