It seems my 2 teenage disc replacement surgeries made me worse
Hi all,
My name is Paige Tullio,
I had 2 back surgeries in Europe the first when I was 17 an artificial disc replacement at L5-S1
In 2017 and the second surgery in 2018 an artificial disc replacement revision surgery at L5-S1. After the first surgery I was desperate to go running to control my anxiety, my mood and my weight. So even though the surgeon told me to wait 3 months and I asked if I could wait a shorter amount of time and he was like okay wait 2 months before running I went running after 6 weeks.
The x-ray showed I can't remember exactly what but I think mild displacement of some sort and I was in more pain post op then pre op but i didn't have nerve pain. Since the pain was worse post the 1st surgery I asked for a revision surgery and my surgeon Dr. Thomas Bierstedt said he could do a fusion for free. I didn't want a fusion cuz I heard fusions lead to more fusions and I wanted to be able to run for the rest of my life. So I went to a different surgeon Dr. Burkhard Rischke and he did a revision disc replacement at L5-S1. I didn't go for a run but I ran to catch a bus up a hill 2 weeks post op and I've been in nerve pain down to my feet ever since. The mental health treatment center I was in 2019 looked at my MRI and told me my pain was psychosomatic and my EEG nerve responses were normal. In my opinion i shouldn't have had back surgery in the first place i was running 10 miles a day pre surgery. I had the surgery cuz i thought my mental problems were all caused by my back pain which i did have pre op but it was mild compared to what i post op and it made it much more painful to run but i still can. I regret the surgeries.
The surgeons are sort of hands off once they do the surgery like we did our job. It's not our problem, it didn't work to solve your pain. I've gained a lot of weight. I was 200 lbs now im 161. I was 130 before the first surgery. I don't know if my pain is actually psychosomatic but it's intolerable.
Cuz right now i'm 24 and back in my 7th mental health treatment center. I really regret my decision 2 get back surgery at 17 as the degeneration I had at L5-S1 was only mild to moderate and there might have been a previous endplate fracture I can't remember. I was a figure skater till I was 14 and the doctors in Canada told me not to get back surgery. They were right, it seems.
Anyone have any advice on how to deal with chronic pain and how to deal with the surgeons? It would be much appreciated, thanks so much! í ½í¹‚ All the best with your journeys as well!