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#11
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My first consultation has been done with Bierstedt. His opinion on my symptoms is that they are atypical and cannot be directly related to the structural and nerve related issues in my spine.
ADR cervical and lumbar is required and he would be pleasantly surprised if the symptoms improve but he skeptical, as he cannot directly relate them to the spine damage. I was hoping for definitive answer, but am hopeful I will be blessed with full recovery in all areas.
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31 year old Canadian - Car Accident 2007 and 2017 - 3 work injuries 2011-2012 - DDD at C5/6, C6/7, L4/5, L5/6 - Extra vertebrae at L6. Desperate for solutions! |
#12
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Unusual symptoms
Marcus,
If you still hunting for a diagnosis, consider getting a good Lyme doctor -- no easy feet. The better ones use this company for blood testing: https://igenex.com/ticktalk/category...ic-approaches/ I had similar symptoms to you back in 2005. My illness turned out to be from hospital-acquired infection, which somehow alluded over 20 different doctors. It turned out to be mycoplasma pneumonia. I was dying for two years, slowly, and I had to figure it out myself. If I didn't, I'd be dead. Please see my research and documentary site: https://www.whyamistillsick.com/ I'd be happy to help if I can!
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"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#13
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No kidding?! I have never considered Lyme disease...I have never been in the hospital for any kind of duration.
Is there any other way to contract Lyme aside from infection and tick bites? I'll take a read of those links shortly. Thanks for the reply....I may PM you for more details.
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31 year old Canadian - Car Accident 2007 and 2017 - 3 work injuries 2011-2012 - DDD at C5/6, C6/7, L4/5, L5/6 - Extra vertebrae at L6. Desperate for solutions! |
#14
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Lyme disease transmission continues to be taboo. Or ignored by the media. And the CDC.
But the reality is that that there are many forms of the bacteria that Borrelia can take (known as phenotypes). In my film at the UNH lab, David shows us the many forms: https://www.youtube.com/watch?v=fJqTDnbL7Yo Syphilis is a STD, right? The Treponema pallidum microbe is very similar to Borrelia. Yet the CDC states that Lyme cannot be transmitted by saliva or sex, but they never explained how or why this can be possible. Nor does Consumer Reports, who provides the worst and most unreliable information on Lyme (and vaccinations) of any national publication.
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"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#15
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Desai
Well...I finally heard back from Dr.Desai suggesting replacement at:
- C4/5, C5/6, C6/7 - L4/5, L5/S1 There are herniations with nerve impingement at all levels noted above. I have to wait until August for a further consultation with him, as he is currently on holidays. After that, I will make the decision and book the flights! 5 level replacement is a huge deal and far bigger than I wanted or expected. Please let me know is anyone one has done this with the ESP discs.
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31 year old Canadian - Car Accident 2007 and 2017 - 3 work injuries 2011-2012 - DDD at C5/6, C6/7, L4/5, L5/6 - Extra vertebrae at L6. Desperate for solutions! |
#16
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Severe on MRI diagnosis is a sure sign for surgery. Looking for ADR myself.
Any follow up? PS Canadian so going through similar conundrums
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[SIZE="1"]Canadian - ADR not available in Canada L4/S1 DDD since 1994 - right side sciatica L4/L5 herniation and discectomy in 2006 - success 2017 bilateral and sacral pain and numbness, cannot sit Dec 2017 L4/S1 (2 levels) Interspinous implant (IntraSpine Cousin Biotech) - no result permanent pain and numbness Narrow spinal canal, scarring, L5/S1 started autofusing Implant must be removed, decompression needed Decision time - discussed with Dr B, Rischke, Desai |
#17
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I would advise not to go with Clavel. He botched up my surgery and they will not respond or give run you arounds when you contact them afterwards. I will be posting story here shortly.
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C3-C4: 2mm central protrusion C4-C5: 1mm central protrusion w/ annular tear C5-C6: Disk mildly narrowed; 1.5mm central protrusion; Uncovertebral joint spurs that mildly narrow right and moderately narrow the left nueral foramina C6-C7: Disk mildly narrowed; extensive modic type II endplate changes; 3 mm central protrusion which extends into the uncovertebral joint spurs; Moderate canal stenosis. Uncovertebral joint spurs that moderately narrow the neural foramina bilaterally. |
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