ADRSupport Community  

Go Back   ADRSupport Community > General Discussion > New Member Introductions

New Member Introductions If you just joined, please introduce yourself here. Please add a signature describing your spinal history (use the "User CP) and ask us how we can help you get started.


Reply
 
Thread Tools
  #1  
Old 10-04-2005, 06:38 AM
Guest
 
Posts: n/a
Default

Hi to everyone,
please exscuse if i have posted thison wrong place, afraid i'm not very good with these things. I had a Cervical Laminectomy on C3/4, no idea what happened, only know i was left in the most terrible pain which my Drs said would soon go away, no help. Went for physiotherapy, he wouldn't touch me, said he could do ir-reversible damage! Back to consultant looking for answers, didn't get any. Lots of things happened but is too long to post.
Eventually sent to Pain Clinic, was diagnosed with peripheral nerve damage, chronic pain etc.
Going to skip a lot of this as its too long. Was in a car crash last year, had to be cut out, i had whiplash, so, back to consultant. Another M.R.I, more prolapsed discs in my neck! Said i should have an Anterior Discectomy very soon as i run the risk of becoming paralysed from neck down but the risks with that type of surgery were high too. I refused, i'm so terrified of both options i wondered if anyone on here could help me understand this a bit better. Sorry this has been such a long post but i need help please.
Regards
molinda
Reply With Quote
  #2  
Old 10-04-2005, 11:27 AM
Alastair Alastair is offline
Senior Member
 
Join Date: Oct 2004
Posts: 2,391
Default

Hi Molinda,
I'm glad you made it to the forum, I'm sure there are some people here who have similar problems to you and may be a solution.

I know we have different health systems in the UK, but the basic principles of spine problems are always the same it seems.
Best wishes,
Alastair
__________________
ADR Munich 26th July 2002 L5/S1. Aged 82 now
Your best asset is your health
My story is here
http://www.adrsupport.org/alastair.html
Thank goodness for Dr Zeegers I am painfree
I am here to help,I live in the UK


I now run the UK spine site and can be contacted at

www.adrsupportuk.com/
Reply With Quote
  #3  
Old 10-04-2005, 12:33 PM
Guest
 
Posts: n/a
Default

Thanks Alastair,
wish i had joined a long time ago, so many interesting subjects. Earlier i watched live surgery for Anterior Discectomy, it didn't frighten me, but i still feel it's not for me as i have Myelopathy. But i feel this site will give me so much more information, all i seem to hear is "there really isn't a lot we can do to help you ". Well, i think out there, there is an answer, so, i'll find it myself ! I am very stubborn !!
Molinda
Reply With Quote
  #4  
Old 10-04-2005, 03:35 PM
Alastair Alastair is offline
Senior Member
 
Join Date: Oct 2004
Posts: 2,391
Default

There is loads of alternative things other than ADR discussed here Molanda have a good look round
Best
Alastair
__________________
ADR Munich 26th July 2002 L5/S1. Aged 82 now
Your best asset is your health
My story is here
http://www.adrsupport.org/alastair.html
Thank goodness for Dr Zeegers I am painfree
I am here to help,I live in the UK


I now run the UK spine site and can be contacted at

www.adrsupportuk.com/
Reply With Quote
  #5  
Old 10-04-2005, 03:58 PM
Fortitudine Fortitudine is offline
Senior Member
 
Join Date: Jan 2005
Posts: 370
Default

Hi Molinda,
I have been investigating my options for a year and a half now. I have a compressed spinal cord at c3/4/5. Heard the same dire warnings. Local NS wanted to do a 3-level posterior fusion (not nice).
I freaked and started looking for alternatives. Also by that time it was 7 months after MRI and I felt just fine ( had been on a 7-day cycling trip in Europe). So kept looking.
Got other opinions - US doc recommended anterior discectomy at one level and acdf at other, Euro. doc recommended 2-level ADR. So it seems that either type of surgery should address the myelopathy.

Had another appt. with NS here 6 mo. after first, told him I had been considering ADR, felt fine, wasn't going for the 3-level fusion. This time his response was, "Come back in a year, maybe I'll have found an alternative"

I have pretty much figured that ADR is my best option. But haven't had it done yet.

If I were in your shoes, I'd get another couple of opinions, and hang around here for a while.

Good luck!
__________________
Cervie trying to avoid 3-level fusion
Reply With Quote
  #6  
Old 10-04-2005, 06:31 PM
Guest
 
Posts: n/a
Default

Hello Molinda,

I was diagnosed with DDD in 1991. Today I've got cord compression at C6-7, and impingement at C4-5 & C5-6. Bulging disc at C3-4.

Docs have recommended fusion from C4-7 (one said C3-7), but since my daily pain level is in the 3 to 4 range and I don't have significant symptoms of myelopathy, I've been looking into options and getting more opinions. ADR seems best for me and now I'm working on finding the best surgeon for my case.

There are a few multi-level cervical ADR recipients here, and some very knowledgeable seekers. Hopefully they'll see your post and respond.

I've learned a lot from the archived posts. Try the search utility, using 'cervical' and '3-level' and whatever else comes to mind.

I'm sorry for your pain, fears & tough decisions ahead ... but I'm glad to see another Cervie!

Best wishes!
Reply With Quote
  #7  
Old 10-04-2005, 07:50 PM
Harrison's Avatar
Harrison Harrison is offline
Administrator
 
Join Date: Oct 2004
Posts: 7,012
Default

Welcome, molinda, I hope we can provide the support you need to get to the chapter in your life!

__________________
"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
Reply With Quote
  #8  
Old 10-04-2005, 07:56 PM
luvmysibe luvmysibe is offline
Senior Member
 
Join Date: May 2005
Posts: 556
Default

Welcome Molinda!
Although I don't have any experience with cervical disc pain, I can relate to your need for assistance. This site is a wonderful place to gather information, ask questions, and gain support from fellow sufferers. Hopefully as you read more you'll be able to acquire more knowledge to improve your situation.
Take care and best wishes!
__________________
Crystal
L5/SI Charite
7/18/05 Dr. Howard
http://www.myspace.com/luvmysibe
http://www.xanga.com/luvmysibe
"A smile is contagious, be a carrier ."
Reply With Quote
  #9  
Old 10-04-2005, 10:31 PM
Justin Justin is offline
Banned
 
Join Date: Oct 2004
Posts: 954
Default

Welcome Molinda...we are here to help. Please don't hesitate to email me if you need anything.

I wish you the very best!

Justin
Reply With Quote
  #10  
Old 10-05-2005, 12:36 AM
Poncho Poncho is offline
Senior Member
 
Join Date: Oct 2004
Posts: 422
Default

Hi Molinda,

Welcome to the forum. I am a "lumbie" patient and somewhat familiar with C-spine issues too.

When was the onset of cervical problems? When did you have your surgery? Do you have any c-spine fractures? Have you sought out any second opinions or more?
__________________
Sincerely,
Poncho (aka Prodisc Poster Girl)
2 level ADR (Prodisc)
Dr. Bertagnoli May 22, 2004 Rudolfinerhaus Vienna, Austria.
Currently DRUG FREE and living life again!
Knowledge is Power!!!
Reply With Quote
Reply

Bookmarks


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -4. The time now is 10:24 AM.


© Copyright 2006-2023 ADRSupport.org All rights reserved.