Facial Asymmetry Due to Injuries

[Renee771]

Hi there. I am still relatively new here. One thing I didn't share, a biggie, is that some of these injuries have effected my face, and how I talk greatly. I began unintentionally isolating myself, telling myself lies, like it will get better soon. That was 5 years ago and it has only gotten worse. It's very embarrassing for me. I want to get it all fixed after surgery on my cervical injuries.

Has anyone else suffered from facial issues due to their injuries?
Has anyone else become so self-conscious that they couldn't be around people because of this?
I am doing better now. I am forcing myself to get out there, and what not.

I need my jaw fixed, and teeth straightened (they've shifted, and I had to have some pulled because an orthodontist and my husband talked me into a Herbst appliance---nasty device and I was wearing it when my late husband threw me across the room using my mandible), and possibly some plastic surgery.

*I think the facial issues were sustained from being thrown across the room by my mandible while wearing the herbst appliance.*

[Harrison]

Renee, has this been diagnosed as a palsy? From your tests, are you sure it's because of nerve compression from the cervical area? Brachial neuritis is not something seen every day among spine patients. I've seen it (occasionally) from infections. In my case, the infection from the intubation procedure started in the throat, and fanned out into other areas like the brachial plexus and even cranial nerves. On a similar note, you may know that Lyme disease often presents in the cervical spine. Bells palsy presents in a very obvious and troubling way in the face.

http://en.wikipedia.org/wiki/Bell's_palsy

http://www.ilads.org/lyme/primary-ca...n-brochure.pdf

I read that you've had multiple injuries, I am sorry. Have you had an EMG?

[Renee771]

Dear Harrison: No, I have no been diagnosed with palsy. I did follow your link on palsy and that's not quite what's wrong.

I had scarlatina as a child, post-op infections, lost of ENT infections as a child (I had 4 ENT surgeries by the time I was 12 to try and halt the chronic infections).

I was diagnosed viral meningitis at 16. E.R. doc said I had it for over a year, because I had been complaining of the symptoms for that long. I went into shock, and finally got my parents attention, lol.

I also have RA, untreated scoliosis, and yes, I have sustained a lot of trauma. a few car accidents. etc.

I would like to note also that I have had "the flu" in my neck a few times as a tween. Immense pain came over my neck and head, and then I became completely unable to move, and my head fell to the side on top of my shoulder. My doctor was perplexed, and said it was an infection of some kind that had come and gone.


I am getting sicker and sicker and nobody is telling me anything. Why wouldn't anyone tell me about the B.N. before the stem cell injections? Or, that there was no disc material to inject the stem cells into? I am frustrated, and disgusted. I had this MRI for the "surgery", my primary knew the results of this MRI when she did a pre-surgical physical. She could have told me, as well as the Colorado surgeons.


Thank you, Harrison. The link on Lyme disease was VERY INTERESTING!!!
I am going to call and make appointment for blood work tomorrow.
Sincerely,

Renee

[Renee771]

I was shown the compression on the cord by the Midwest Spine Institute. I have sent my MRI to San Francisco surgeon, and a place in Florida that does disc implants and also my pain doc have all expressed concern over me having ANY kind of small accident because it could be "detrimental" because of the cord compression. Surgeon on Monday that denied me pointed out the herniation's in T1 and T2. The osteophytes are huge.

I had an EMG.

Originally Posted by Harrison

Renee, has this been diagnosed as a palsy? From your tests, are you sure it's because of nerve compression from the cervical area? Brachial neuritis is not something seen every day among spine patients. I've seen it (occasionally) from infections. In my case, the infection from the intubation procedure started in the throat, and fanned out into other areas like the brachial plexus and even cranial nerves. On a similar note, you may know that Lyme disease often presents in the cervical spine. Bells palsy presents in a very obvious and troubling way in the face.

Bell's palsy - Wikipedia, the free encyclopedia

http://www.ilads.org/lyme/primary-ca...n-brochure.pdf

I read that you've had multiple injuries, I am sorry. Have you had an EMG?

[Harrison]

Renee, I had to figure out what my diagnosis was since I was slowly dying. I was on antibiotics for 3.5 years. My story and research is chronicled in my film which is now in 5 languages. See:

Story | WhyAmIStillSick.com

It appears as though you had a number of infections that settled into your body. I would strongly recommend using Igenex for blood testing; also test for co-infections:

Welcome to IGeneX, Inc.

Standard lyme tests screen only for ONE strain of Borrelia, when if fact there are 100s of strains! No wonder most tests leave people as "negative." Another scam that leaves people guessing! Igenex screens for many more strains...

Most doctors are reluctant to admit that certain viruses and bacteria not only have a tendency to settle into joint tissue (they love collagenous tissue) but stay there indefinitely. The little critters have developed special enzymes that help them tunnel into tissue, away from blood, O2 and of course immune cells. So they've learned how to survive in the body, safely.

This still leaves the question of many other kinds of bugs that can infect nerves (peripheral, even cranial). This is a bit more challenging. If you can convince your PCP or an ENT doc, I recommend using PathoGenius who using molecular diagnostics (PCR to identify traces of DNA from microbes). Strep, staph and yeasts are often involved in sinus infections; left untreated they cause nasty problems that often go systemic.

This is upsetting stuff, but more and more of this is occurring every day. And our medical authorities answer for this? Less diagnostics and less antibiotics.

Brilliant, eh?!

[Renee771]

Dear Harrison: You've provided me with excellent, excellent information, and resources and I am very grateful: Thank you.

You are a remarkable human being. I think what you have done in getting this information out to the masses in above honorable, and commendable: It's the act of a great humanitarian.


Sincerely,
Ever-grateful,
Renee

Originally Posted by Harrison

Renee, I had to figure out what my diagnosis was since I was slowly dying. I was on antibiotics for 3.5 years. My story and research is chronicled on my film which is now in 5 languages. See:

Story | WhyAmIStillSick.com

It appears as though you had a number of infections that settled into your body. I would strongly recommend using Igenex for blood testing; also test for co-infections:

Welcome to IGeneX, Inc.

Standard lyme tests screen only for ONE strain of Borrelia, when if fact there are 100s of strains! No wonder most tests leave people as "negative." Another scam that leaves people guessing! Igenex screens for many more strains...

Most doctors are reluctant to admit that certain viruses and bacteria not only have a tendency to settle into joint tissue (they love collagenous tissue) but stay there indefinitely. The little critters have developed special enzymes that help them tunnel into tissue, away from blood, O2 and of course immune cells. So they've learned how to survive in the body, safely.

This still leaves the question of many other kinds of bugs that can infect nerves (peripheral, even cranial). This is a bit more challenging. If you can convince your PCP or an ENT doc, I recommend using PathoGenius who using molecular diagnostics (PCR to identify traces of DNA from microbes). Strep, staph and yeasts are often involved in sinus infections; left untreated they cause nasty problems that often go systemic.

This is upsetting stuff, but more and more of this is occurring every day. And our medical authorities answer for this? Less diagnostics and less antibiotics.

Brilliant, eh?!

[Harrison]

Thanks for the kind words, but...

...sometimes this information only sets up another cascade of frustrating visits with doctors who don't have the mindset/training/curiosity/CME/dedication to support patients in getting a root cause diagnosis.

Whatever the case, please keep us posted. I hope you find some better doctors soon.

[Renee771]

Thank you.
I apologize.

Originally Posted by Harrison

Thanks for the kind words, but...

...sometimes this information only sets up another cascade of frustrating visits with doctors who don't have the mindset/training/curiosity/CME/dedication to support patients in getting a root cause diagnosis.

Whatever the case, please keep us posted. I hope you find some better doctors soon.

[colorado babe]

Originally Posted by Harrison

Renee, I had to figure out what my diagnosis was since I was slowly dying. I was on antibiotics for 3.5 years. My story and research is chronicled in my film which is now in 5 languages. See:

Story | WhyAmIStillSick.com

It appears as though you had a number of infections that settled into your body. I would strongly recommend using Igenex for blood testing; also test for co-infections:

Welcome to IGeneX, Inc.

Standard lyme tests screen only for ONE strain of Borrelia, when if fact there are 100s of strains! No wonder most tests leave people as "negative." Another scam that leaves people guessing! Igenex screens for many more strains...

Most doctors are reluctant to admit that certain viruses and bacteria not only have a tendency to settle into joint tissue (they love collagenous tissue) but stay there indefinitely. The little critters have developed special enzymes that help them tunnel into tissue, away from blood, O2 and of course immune cells. So they've learned how to survive in the body, safely.

This still leaves the question of many other kinds of bugs that can infect nerves (peripheral, even cranial). This is a bit more challenging. If you can convince your PCP or an ENT doc, I recommend using PathoGenius who using molecular diagnostics (PCR to identify traces of DNA from microbes). Strep, staph and yeasts are often involved in sinus infections; left untreated they cause nasty problems that often go systemic.

This is upsetting stuff, but more and more of this is occurring every day. And our medical authorities answer for this? Less diagnostics and less antibiotics.

Brilliant, eh?!

Harrison - You have my attention in regards to Lyme's Disease. I went to naturopath who did a body scan on me and claimed I had Lyme's Disease. Went to the VA and got tested for it and they said no. Can my family doctor order these tests? Or is something I would have to pay for out of pocket?

[Renee771]

Originally Posted by colorado babe

Harrison - You have my attention in regards to Lyme's Disease. I went to naturopath who did a body scan on me and claimed I had Lyme's Disease. Went to the VA and got tested for it and they said no. Can my family doctor order these tests? Or is something I would have to pay for out of pocket?

I called my PCP, and she said they would be happy to draw the blood work, send it and file a claim for "that" but I would need to speak with both IGeneX, and PathoGenius and/or my insurance to find out how who will be paying the bill.
I am calling each company right now (hopefully nothing gets in the way) and I will be more than happy to PM you with what I learn, CB.
Smiles.