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  #1  
Old 11-04-2010, 03:35 AM
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nofusion nofusion is offline
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Join Date: Sep 2010
Posts: 5
Default I need a surgery and I dont want to be fused

Greetings all sorry we had to meet this way. Well, I have significantly large C6/C7 herniation after moving a heavy credenza at work June 14th of this year. I have since gone to Physical therapist who gave me some exercises then a nap on a decompression machine; The decompression took the constant numbness out of my left hand, but I am still plagued by muscle spasms and weakness of my left arm and chest. I am now going through with the McKenzie method. I have seen 2 surgeons. Both offered me Fusion only one offered the Prodisc-c replacement, but he doesn't have any patients I can speak to about their opinion of it. This is the only disk I have problems with. and I see

I really feel bad for some of you, because this out right blows. just even trying to do simple everyday things like laundry, empty and load the dishwasher, vacuuming are extremely taxing. I fear the inevitble and the quotes from my doctors physiologist "people who have what you have, have surgery" Neurosurgeon "it doesn't get better,only worse if anything"

<---that's how I felt when I saw the MRI.

I would like to know what your opinion is if you have had a disk replaced.

Thank you all and I am sorry that we suffer
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  #2  
Old 11-05-2010, 10:53 AM
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Harrison Harrison is offline
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Sorry you are here, but I hope we can help. For what it's worth, the majority of people here that require one disc replacement (or fusion for that matter) usually do well after their procedure.

I am six years post-op from lumbar ADR -- which is thought to be more challenging in terms of the procedure and the recovery -- but all is well!

Again, your situation bodes well for whichever treatment you and your medical team decide is best for you. Have you obtained all your medical records on CD? Radiologist reports? What are your next steps (besides finding a new neurosurgeon)?
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"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
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  #3  
Old 11-05-2010, 06:59 PM
kennethhoff kennethhoff is offline
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Join Date: May 2005
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I too am sorry to hear about your situation. But I noticed you were in NJ (where I lived most of my life) and was wondering about the surgeons you saw. My experience with surgeons is they like to cut. Not all, but that is what they do. Would you still see other surgeons for recomendations? If so, the northeast is a good area for medicine. Dr Balderston at U of Penn is a great doc and does ADR. So does the hopital for special surgery in NY (I think his name is Dr Bitan?). And I'm sure others can recommend some top docs for ADR.

Everyone's experience with surgery is unique to them, Their own medical history, current health and co-morbidities, support, outlook, etc ... The best I think anyone can do is do as much research as you can on your condition, see the best docs you can find, talk to others such as friends, family, others here on the forum, and in the end, the decision is still a very personal one.

If it has to be done, like you, I still think ADR is a better option. Just find the right doc, hospital, etc .. for it. I wish you the best!

Ken
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  #4  
Old 11-06-2010, 10:36 AM
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jss jss is offline
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Join Date: Nov 2009
Posts: 1,411
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nofusion,

Welcome and condolences. I'm glad that you're getting some relief from the therapy; temporary or otherwise. I will tell you that I know two people that underwent ESI's, chiropractic, therapy, etc... for a bulging cervical disc several years ago and have managed to not have any problems since. From what I've seen, those two aren't the norm; but there is at least some hope that you might avoid surgery.

I had two fusions in the years before cervical ADR was available even in Europe. I've since had two cervical ADRs; C3/4 and C6/7. After the ADRs I felt the same as I did before the associated symptoms developed, and today, one year after that surgery, I have no physical limitations.

So at least for me ADR has thus far proven to have been the right decision.

Good luck, Jeff
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C4/5 - ACDF in 2000
C5/6 - ACDF in 2002
C3/4 & C6/7 - M6 ADR, Nov 2009, Barcelona
Conceded defeat to a manifestly disingenuous BCBS-TX in my quest for reimbursement, Jan 2011
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  #5  
Old 11-09-2010, 05:29 AM
Maddie Maddie is offline
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Join Date: Oct 2008
Posts: 138
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I had both lumbar and cervical levels done in March, 2010. Because of severe metal allergies that I discovered last fall, I couldn't have conventional ADR or fusion materials...none were available in North America. I searched for almost five years for a solution to my pain and compression, fighting with insurance and trying to find a good surgeon.

I traveled to Brazil in March to Dr. Luiz Pimenta and had the Nuvasive NeoDisc inserted at C5/6, and also had an XLIF & ALIF at L4/5 & L5/S1 respectively. There is no metal-free lumbar ADR available at this time and I couldn't take the pain anymore. Even if I had the choice, I would still have a fusion at L5/S1 with an ADR in the L4/5 above.

I had significant neurological problems because of cord compression at the C5/6 and some at C4/5. Several surgeons warned that I could become a quadriplegic if I fell or had a small fender-bender. I felt that I couldn't wait any longer and paid for the trip myself out of necessity. But this particular surgeon is much less expensive than most others from out of country, despite his amazing reputation.

I'm happy to say that the surgery is almost 100% successful, with little pain now and no significant neurological problems. None of the previous surgeons believed that the problems could be reversed, just stopped from getting any worse. I feel very lucky.

If you'd like any more information, feel free to send me an email.
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C3/4-5/6- Mod. ant., severe posterior bulging w. nerve root compression. Sev. narrowing of spinal canal with cord compression.

L4/5/S1- Mod. narrowing, bulging disc, significant hypertrophy of flava lig.

Highly allergic to all metals.

NEW: 3/16/2010: Successful surgery in Brazil w. Dr. Pimenta; Nuvasive NeoDisc at C5/6, and XLIF & ALIF at L4/5/S1 w. PEEK cages. No rods, screws, plates. Non-metal lumbar ADR not available at present time, so went with fusion.
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  #6  
Old 11-10-2010, 03:06 PM
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Tyler Tyler is offline
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Join Date: Jul 2010
Posts: 85
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Hey Nofusion - sorry to hear about the situation! I just picked up your message as well and sent a reply but if I can be of further help in any way don't hesitate to ask!
Best,
Tyler
__________________
2010 Cycling accident tripped up an old motorcycle injury
C5-6 and C6-7 disc degeneration, foraminal compromise with indentation of nerve roots causing arm pain and weakness
Aug-27-2010: 2-level ADR (C5-6 & C6-7) with Spinal Kinetics's M6-C by Nick Boeree, Nuffield Wessex Hosp., Eastleigh, UK
Completely off of pain meds since a few days post-op and symptom-free; have returned to cycling, climbing and all other activities (but staying off the motorcycle)
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  #7  
Old 11-19-2010, 02:35 PM
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nofusion nofusion is offline
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Hi Maddie,

Thank you for the reply. I am happy to hear you had great results. I hope it continues and you stay healthy.

The orthopedic surgeon who offered the Prodisc-c called yesterday to rescind the offer. He is now only willing to perform a fusion.

so now I really dot know what to do. all signs seam to be pointing towards fusion
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Herniation C6/C7 Radiculopathy
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  #8  
Old 11-19-2010, 08:47 PM
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Harrison Harrison is offline
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Question

Ken, Jeff, Maddie, Tyler: thanks for posting.

Nofusion,

Why did the surgeon change his mind? What changed?!
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"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
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