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  #1  
Old 04-10-2005, 09:08 AM
mmglobal mmglobal is offline
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As many of you have seen, I have been hoping that my upcoming patient seminar would be the kick-off for a non-profit spine patients' advocacy group. Well, a lot has been happening behind the scenes and I've acquired a grant to help start such a group. Over the next few weeks, we'll be firing up a 501c3 non-profit association. I'd like to see such an agency,

1. facilitate easy access to current, accurate information for spine patients.

2. give the patient community a larger voice with the medical community, the orthopedics industry, government and regularatory agencies.

I'd like your help. First.... a name. I've been considering the International Spine Patient Society.

>>> If anyone has suggestions for a name, domain name, etc... I'm all ears.

>>> Second, I'd like to hear ideas about what services a society may be able to provide.

Mark
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Old 04-10-2005, 09:18 AM
Alastair Alastair is offline
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International Patient Spine Society


The patients are International and we all have spines so spines are not International?(Or are they?)
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Old 04-10-2005, 04:23 PM
ans ans is offline
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Spine Patient Society, International

Funny, this early am in a dazed state I was thinking that you could make a non-profit, then I read this!

ans
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Old 04-10-2005, 11:04 PM
biffnoble biffnoble is offline
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�International Patient Spine Society�.

Sounds like a 70's rock group with a heavy "back-beat".

How 'bout: Worldwide Spiney Society.

I know: sounds like a Marvel Comic. Oh well.

International Spine Consumers.
Definitely has a ghoulish quality.

It's a great idea. Might the emphasis more appropriately be put on: Advocate, rather than Patient?

International Spine Advocates, Inc.
Worldwide Spine Advocates, Inc.
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Old 04-10-2005, 11:20 PM
ans ans is offline
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"International Spine Consumers.
Definitely has a ghoulish quality".

Great!

To get external funds, use pity, e.g. Spinal Injury Victims, Intl.

Cheerful Spineys, Intl. Endless possiblilities..
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Severe, extensive DDD, considered inoperable by Dr. Regan, Lauressen, & some guy at UCLA. Severe foraminal stenosis (guess they can't operate!) and some spinal cord compression that Lauryssen would fix if gets outta hand.
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Old 04-12-2005, 02:40 AM
Still Standing Still Standing is offline
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Mark,
This sounds like a great idea. I would love to help out in any way I can. The mission of this group sounds like something that could be very helpful for a lot of people.

About the name: I like the International Spine Patient Society. Sorry, Alastair, I can't go for the name International Patient Spine Society. Perhaps because my spine is not patient at all. It is quite impatient! )
Still standin
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Old 04-12-2005, 12:39 PM
Mariaa Mariaa is offline
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I am grossly unimaginative at the moment~ altho I very much like and agree with the name "International Spine Patient Society"~
It's descriptive and concise~ just imagine "The ISPS"~ very nice ring to it! Thank you Mark!
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Old 04-12-2005, 02:39 PM
Justin Justin is offline
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International Society for Spine Patients (ISSP)

Justin
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  #9  
Old 04-12-2005, 03:10 PM
mmglobal mmglobal is offline
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I have reserved the domain ispine.org.

Thanks to Lynnie at MGH... we'll be something like

International
Spine
Patients'
Information
Network
E -something or other....

I'm still open to suggestions and am not totally married to the name.

More later,

Mark
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  #10  
Old 04-22-2005, 05:42 PM
Rein Rein is offline
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Federation Spine Patients International (FSPI) (Fispy)

The wording and syntax allows for a more international feel; individual countries can translate more readily without transposing the words.

This also provides for future formation of individual country or region-level organizations who may wish to belong to the international Federation. North to south and east to west, that would be: CASPI, USSPI, MEXSPI, ASSPI(uh oh!), NASPI, EUSPI (Gotta think big!) ;-)

Not to be left out, I want to form the CCSPI.
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