ADRSupport Community  

Go Back   ADRSupport Community > General Discussion > New Member Introductions

New Member Introductions If you just joined, please introduce yourself here. Please add a signature describing your spinal history (use the "User CP) and ask us how we can help you get started.


Reply
 
Thread Tools
  #1  
Old 07-31-2011, 10:05 PM
MeggieLynn's Avatar
MeggieLynn MeggieLynn is offline
Senior Member
 
Join Date: Mar 2011
Posts: 114
Default Cervical & SI Joint Issues

Hello Everyone,

I've been reading this forum for a few months, have never posted, but I guess it's time. I have multiple pain issues & it's taken me a while to try to sort through it all.

A few years ago I was diagnosed with "mild" cervical DDD-3 levels affected - however my symptoms have been anything but mild. I have severe spasming of upper and lower traps w/pain & weakness into the shoulders and arms R>L, also occasional "zinger" nerve-type pain into the 4th & 5th fingers R hand and tip of baby finger on the left. It all started after I "injured my back" shoveling.

I have had fibromyalgia for > than a decade but never considered myself a chronic pain patient. Mostly had major sleep issues with some fatigue but the fibro pain was 80% kept at bay with exercise, good nutrition, and various supplements.
I have been through multiple pain clinics, tried multiple meds, and various treatment modalities and nothing has been effective in addressing the above symptoms. The pain clinic MDs diagnosed it as chronic myofascial pain and neurogenic thoracic outlet syndrome. I did not get an MRI until 15months into all this and Cervical DDD can mimic all the above syndromes so its a little complicated.

Found an ADR surgeon in my area who agrees that the all this could be coming from my discs and the next step would be a discogram, but need to put this on hold as I injured my R SI Joint last February. Got botox into my neck and upper back at that time & became very ill and weak. Could barely get out of the tub one morning and I twisted my pelvis somehow.
Arthrograms were positive x 2, not a candidate for for RF neuotomy, & was given referrals to see some surgeons for possible fusion of that joint.

Not that I want to rush into that but I'm pretty disabled by it - on crutches and using a wheel chair. Will be seeing the surgeon that "CindyLou" used for her SI Joint fusion - don't know if she's had any good long term results though.
Thank you for taking the time to read this long Intro and I welcome any questions, comments, or suggestions you may have.

Best Regards, MeggieLynn
__________________
*C4-5 and C5-6 Mild & moderate posterior broad-based disc bulges w/small posterior end plate osteophytes, mild spinal canal stenosis.
*C6-7 Broad-based posterior disc bulge w/small focal posterior central protrusion mildly indenting the anterior thecal sac, no canal or neural foraminal stenosis.
*SI Joint issues, Fibromyalgia, Chronic Myofascial Pain, Neurogenic Thoracic Outlet Syndrome
*Tx's-PT, 2 ESI's Interlaminar & transforaminal, 2 SI Joint steroid injections, Failed LBB for SI Joint
Reply With Quote
  #2  
Old 08-01-2011, 07:42 PM
annapurna annapurna is offline
Senior Member
 
Join Date: Dec 2004
Posts: 1,646
Default

Few thoughts: Do you know why you weren't a candidate for RF neurotomy, often called rhizotomy or rhizo on this site? It's a good way to buy time to come up with a permanent fix. If your doc understood that you didn't regard the procedure as a permanent solution and would pursue somethign further as soon as you could recover enough to get all of yoru diagnostic work done, they might be willing try something like that.

Laura was diagnosed with fibromyalgia early into her recovery from lumbar ADR when her SI joint and L45/L5S1 facets were still very painful. It's vanished through the years when those pain sources became controllable without the need for even weekly pain meds. That makes me really believe your implication that your fibromyalgia might be less severe than you thought and some of your problem might be chronic pain from other sources.

Have you tried prolotherapy for the SI joint? I'd bet more on rhizo to buy you a little time but prolotherapy might work in much the same fashion. I'd really spend the time discussing your reaction to the botox as that might mean that prolotherapy isn't a good idea for you.

I don't really have that much to offer unfortunately. You're probably right that the collection of problems you already have precludes one more insult to your system from a discogram. You could see about getting the discogram and just planning on a needing a week or so of care and bedrest. I don't know if you have someone who could help you to that degree but you seem to be in the position of having symptoms from problem A preventing you from solving problem B which prevents you from solving problem C....
__________________
Laura - L5S1 Charitee
C5/6 and 6/7 Prodisc C
Facet problems L4-S1
Knee, Shoulder, Toe, Finger, Elbow Problems

Jim - no spine problem but lots of other fun medical challenges

"There are many Annapurnas in the lives of men" Maurice Herzog
Reply With Quote
  #3  
Old 08-01-2011, 09:07 PM
MeggieLynn's Avatar
MeggieLynn MeggieLynn is offline
Senior Member
 
Join Date: Mar 2011
Posts: 114
Default

Hi Jim,
In order for insurance to pay for the rhizotomy, you have to pass 2 Lateral Branch Block tests. Somehow I failed the first one - I got really good relief the first hour, but that relief quickly fell off in the second hour. I guess you need at least 2 hours of good solid relief. So, yes, that was the initial intention in trying to buy me some time.
I've considered prolotherapy, but have been hesitant, because of the fibromyalgia and how I reacted to the botox. Triggerpoint injections would cause somewhat of the same response with the same severe spasming and flaring of symptoms. I thought the botox would offset that - but no such luck. I'm thinking maybe the botox had some affect to the top layer of muscles but then perhaps the underlying layers of muscles overcompensated with even more tightening. In any case, I'd like to see the results of my pelvic/SI Joint CT to see if I really did "yank" that joint out of alignment before thinking about prolo. I will be seeing Dr John Stark next week - the SI Joint surgeon to review it.
It was the neck sugeon who suggested I deal with the SI Joint first.

MeggieLynn This is sort of how I look when I do try to walk - only a lot slower and kind of dragging the right leg.
__________________
*C4-5 and C5-6 Mild & moderate posterior broad-based disc bulges w/small posterior end plate osteophytes, mild spinal canal stenosis.
*C6-7 Broad-based posterior disc bulge w/small focal posterior central protrusion mildly indenting the anterior thecal sac, no canal or neural foraminal stenosis.
*SI Joint issues, Fibromyalgia, Chronic Myofascial Pain, Neurogenic Thoracic Outlet Syndrome
*Tx's-PT, 2 ESI's Interlaminar & transforaminal, 2 SI Joint steroid injections, Failed LBB for SI Joint
Reply With Quote
  #4  
Old 08-01-2011, 10:27 PM
annapurna annapurna is offline
Senior Member
 
Join Date: Dec 2004
Posts: 1,646
Default

I think we're both thinking the same thing about prolotherapy: might help, might really mess up your other symptoms.

Have you thought about going outside of the country for the rhizo? I know everyone thinks of doing that for surgery but Laura had a two level rhizo done by a doc in Regensburg for about $3-5k US if I remember right. It's a stiff price but it might allow you time to deal with each problem in turn if you could get one under control short-term. I only suggest that because it might let you get off the insurance merry-go-round.
__________________
Laura - L5S1 Charitee
C5/6 and 6/7 Prodisc C
Facet problems L4-S1
Knee, Shoulder, Toe, Finger, Elbow Problems

Jim - no spine problem but lots of other fun medical challenges

"There are many Annapurnas in the lives of men" Maurice Herzog
Reply With Quote
  #5  
Old 08-01-2011, 11:27 PM
MeggieLynn's Avatar
MeggieLynn MeggieLynn is offline
Senior Member
 
Join Date: Mar 2011
Posts: 114
Default Undecided

I'm not sure what to do about anything. My head has been spinning the last couple of months. A rhizo for the SI Joint is not so straight forward as it has a very complex innervation pattern. In 60% of the population it is primarily innervated ventrally(backside) & the other 40% its anterior or from the front. Generally RF ablations are done only from the ventral side covering lateral branches of L5,S1,S2,&S3 and there are about 8-9 lateral branches of these nerves that they have to "burn". So it probably would be alot more expensive.

For the anterior side denervation they would have to start farther up like at L2 and proceed down. Perhaps I'm in that population where I am more innervated anteriorly & maybe that is why I failed the block. Thanks for your suggestion though.

MeggieLynn
__________________
*C4-5 and C5-6 Mild & moderate posterior broad-based disc bulges w/small posterior end plate osteophytes, mild spinal canal stenosis.
*C6-7 Broad-based posterior disc bulge w/small focal posterior central protrusion mildly indenting the anterior thecal sac, no canal or neural foraminal stenosis.
*SI Joint issues, Fibromyalgia, Chronic Myofascial Pain, Neurogenic Thoracic Outlet Syndrome
*Tx's-PT, 2 ESI's Interlaminar & transforaminal, 2 SI Joint steroid injections, Failed LBB for SI Joint
Reply With Quote
  #6  
Old 08-02-2011, 08:36 AM
Jstuckey's Avatar
Jstuckey Jstuckey is offline
Senior Member
 
Join Date: Nov 2010
Posts: 305
Default

Just to clarify for your own understanding, ventral=front/anterior (abdomen side), dorsal = back/posterior.
__________________
Joey Sue - 50 years old
9/28/2011: Hybrid STALIF TT interbody fusion at L5-S1 and M6-L ADR L4-5 with Nick Boeree, UK - forever grateful to you Nick! Still doing great.
Prior to the fix: Severe DDD L4-5 and L5-S1 with moderate facet degen at L5-S1, but only mild facet degeneration at L4-5.
http://healthyback2011.blogspot.com/
Reply With Quote
  #7  
Old 08-02-2011, 09:44 AM
MeggieLynn's Avatar
MeggieLynn MeggieLynn is offline
Senior Member
 
Join Date: Mar 2011
Posts: 114
Default

Thanks for the clarification - I always seem the get the front and backsides mixed up especially when it comes to the spine.
__________________
*C4-5 and C5-6 Mild & moderate posterior broad-based disc bulges w/small posterior end plate osteophytes, mild spinal canal stenosis.
*C6-7 Broad-based posterior disc bulge w/small focal posterior central protrusion mildly indenting the anterior thecal sac, no canal or neural foraminal stenosis.
*SI Joint issues, Fibromyalgia, Chronic Myofascial Pain, Neurogenic Thoracic Outlet Syndrome
*Tx's-PT, 2 ESI's Interlaminar & transforaminal, 2 SI Joint steroid injections, Failed LBB for SI Joint
Reply With Quote
  #8  
Old 08-03-2011, 03:11 PM
bgeary bgeary is offline
Junior Member
 
Join Date: Dec 2009
Posts: 4
Default

MeggieLynn,

You may want to look at something other than current spine issues causing your pain and fibro. The fact that you had fibro and then had the cervical & SI issues could be systemic from something bigger like a bacterial or chronic infection that eventaully caused the other issues. Have you been tested for any kinds of infections?

Bill
__________________
2007 - Accident that resulted in spine compression MRI herniated L5-S1 also DDD at same level - multiple ESI, chiro, physical therapy, MRI

2008 - Swimming for exercise herniated C4/C5 & C6/C7 DDD at both levels - Fusion at C5/C6
2 months after surgery started suffering from strange symptoms / pain throughout spine

2009- Diagnosed with Fibromyalgia

2011 - After 4 surgeons , 4 MDs diagnosed with Lyme Disease from Naturopath

Current - working on treatment for all the above
Reply With Quote
  #9  
Old 08-03-2011, 05:50 PM
MeggieLynn's Avatar
MeggieLynn MeggieLynn is offline
Senior Member
 
Join Date: Mar 2011
Posts: 114
Default

Hi Bill,
I've been tested for Lyme disease twice and its come back negative twice. I know some researchers are focusing on a possible bacterial/viral connections to fibro but I really don't think that is the case with me. Other than having the fibro, I've really been been very healthy and rarely get sick with infections. I've gone through an entire decade and have only gotten about 3-4 colds whereas most people get that many in a year.

I believe the fibro is because of my poor sleep. Two sleep studies have shown that I have little or no REM sleep and spend little time in the deeper stages of sleep. Six years after the poor sleep started the muscle aches & poor tolerance to repetitive-type exercises started and then the fibro dx. The first year was difficult w/muscle pain but it then improved w/Tai Chi, a light walking & biking program. I never had chronic pain in my neck, upper back, and shoulders until after I "injured" my back.

As far as the cervical issues, I think I know how the DDD started. I was rear-ended 3 times in the last 15 years, in the same time frame I had a major fall and landed mostly on my head w/my arms just barely breaking the fall, I got caught up in the home improvement craze and did far too many projects that were not good for my strength and fitness level and w/maybe not the best body mechanics at times. I think the SI Joint injury was just an unfortunate occurrence.

MeggieLynn
__________________
*C4-5 and C5-6 Mild & moderate posterior broad-based disc bulges w/small posterior end plate osteophytes, mild spinal canal stenosis.
*C6-7 Broad-based posterior disc bulge w/small focal posterior central protrusion mildly indenting the anterior thecal sac, no canal or neural foraminal stenosis.
*SI Joint issues, Fibromyalgia, Chronic Myofascial Pain, Neurogenic Thoracic Outlet Syndrome
*Tx's-PT, 2 ESI's Interlaminar & transforaminal, 2 SI Joint steroid injections, Failed LBB for SI Joint
Reply With Quote
  #10  
Old 08-03-2011, 08:26 PM
Harrison's Avatar
Harrison Harrison is offline
Administrator
 
Join Date: Oct 2004
Posts: 6,972
Default

Bill, thanks for posting. MeggieLynn, when you have some time, pls see this topic on Lyme Disease testing -- which is controversial for myriad reasons:

http://www.adrsupport.org/forums/f44...nic-pain-8368/

Was your Lyme Disease test assay regionalized for your geographic part of the country? Were you tested for co-infections (viruses, other bacteria, protozoa)? An accurate Lyme Disease diagnosis is more than a blood test -- it relies on lab results, including a blood panel, and a clinical diagnosis from a trained doctor.

I think most of us would all agree that DDD is multifactorial, but in some cases it's more weighted to one factor than another:

- poor diet
- loading the spine by sitting all day
- trauma
- comorbidities (weight, smoking, etc.)
- bacterial infection (localized or systemic)

Also see this topic on how microbial infection has caused acute and chronic disc spinal disease.
__________________
"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
Reply With Quote
Reply

Bookmarks

Tags
borrelia, ehrlichia, lyme coinfection, lyme disease arthritis, spinal arthritis

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Sleep Issues trkdoc714 The Big File 15 12-22-2008 09:30 PM


All times are GMT -4. The time now is 09:51 AM.


© Copyright 2006-2017 ADRSupport.org All rights reserved.