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The Big File All issues not easily categorized in the above forums are here. Comments on general health, diet, "getting comfortable," and more are here. |
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#1
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As many of you have seen, I have been hoping that my upcoming patient seminar would be the kick-off for a non-profit spine patients' advocacy group. Well, a lot has been happening behind the scenes and I've acquired a grant to help start such a group. Over the next few weeks, we'll be firing up a 501c3 non-profit association. I'd like to see such an agency,
1. facilitate easy access to current, accurate information for spine patients. 2. give the patient community a larger voice with the medical community, the orthopedics industry, government and regularatory agencies. I'd like your help. First.... a name. I've been considering the International Spine Patient Society. >>> If anyone has suggestions for a name, domain name, etc... I'm all ears. >>> Second, I'd like to hear ideas about what services a society may be able to provide. Mark |
#2
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International Patient Spine Society
The patients are International and we all have spines so spines are not International?(Or are they?)
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ADR Munich 26th July 2002 L5/S1. Aged 82 now Your best asset is your health My story is here http://www.adrsupport.org/alastair.html Thank goodness for Dr Zeegers I am painfree I am here to help,I live in the UK I now run the UK spine site and can be contacted at www.adrsupportuk.com/ |
#3
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Spine Patient Society, International
Funny, this early am in a dazed state I was thinking that you could make a non-profit, then I read this! ans
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Severe, extensive DDD, considered inoperable by Dr. Regan, Lauressen, & some guy at UCLA. Severe foraminal stenosis (guess they can't operate!) and some spinal cord compression that Lauryssen would fix if gets outta hand. |
#4
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�International Patient Spine Society�.
Sounds like a 70's rock group with a heavy "back-beat". How 'bout: Worldwide Spiney Society. I know: sounds like a Marvel Comic. Oh well. International Spine Consumers. Definitely has a ghoulish quality. It's a great idea. Might the emphasis more appropriately be put on: Advocate, rather than Patient? International Spine Advocates, Inc. Worldwide Spine Advocates, Inc.
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Cervical ADR of interest. |
#5
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"International Spine Consumers.
Definitely has a ghoulish quality". Great! To get external funds, use pity, e.g. Spinal Injury Victims, Intl. Cheerful Spineys, Intl. Endless possiblilities..
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Severe, extensive DDD, considered inoperable by Dr. Regan, Lauressen, & some guy at UCLA. Severe foraminal stenosis (guess they can't operate!) and some spinal cord compression that Lauryssen would fix if gets outta hand. |
#6
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Mark,
This sounds like a great idea. I would love to help out in any way I can. The mission of this group sounds like something that could be very helpful for a lot of people. About the name: I like the International Spine Patient Society. Sorry, Alastair, I can't go for the name International Patient Spine Society. Perhaps because my spine is not patient at all. It is quite impatient! ) Still standin
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Still Standing Annular tears L4-S1 06/05 Charite L4/5 ) ) |
#7
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I am grossly unimaginative at the moment~ altho I very much like and agree with the name "International Spine Patient Society"~
It's descriptive and concise~ just imagine "The ISPS"~ very nice ring to it! Thank you Mark! |
#8
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International Society for Spine Patients (ISSP)
Justin |
#9
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I have reserved the domain ispine.org.
Thanks to Lynnie at MGH... we'll be something like International Spine Patients' Information Network E -something or other.... I'm still open to suggestions and am not totally married to the name. More later, Mark |
#10
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Federation Spine Patients International (FSPI) (Fispy)
The wording and syntax allows for a more international feel; individual countries can translate more readily without transposing the words. This also provides for future formation of individual country or region-level organizations who may wish to belong to the international Federation. North to south and east to west, that would be: CASPI, USSPI, MEXSPI, ASSPI(uh oh!), NASPI, EUSPI (Gotta think big!) ;-) Not to be left out, I want to form the CCSPI.
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03/09/26 - Ruptured L5-S1. Years of pain, discectomy, research into anatomy, hardware, clinical trials, facilities, surgeons, techniques, insurance. Attempts at ProDisc, Activ-L trials. Now, low bone density. D'oh!!! At 61 years, no longer qualifying for trials due to my age (chronological, not physical or mental). 2009 - Working on improving bone density or getting rich so I can go to Germany, where medicine and insurance have gone beyond the Stone Age. |
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