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  #1  
Old 11-26-2016, 01:02 PM
Nestletea Nestletea is offline
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Join Date: Nov 2016
Posts: 33
Default New Member Intro - Nestletea

Good Afternoon,

I wanted to introduce myself and give some background history on my injuries. I live in St. Augustine, Fl and work as a guidance counselor. I am married and have two boys - 7 and 10 years old, who are both extremely active. As a family we love the beach, soccer, walking, visiting Old Town St. Augustine, and watching football.

On August 13, 2015 I was rear-ended at 45 mph while stopped several cars back behind a school bus. This rear-end collision caused a herniated C5/C6 and L5/S1. I began my long journey of conservative therapy and underwent several MRI's and NCV/EMG's. I lost strength in my right leg and had foot drop and began experiencing intermittent saddle area numbness. I experienced constant sciatic pain down both legs, although worse on the right side. I also lost strength in my right arm - bicep and wrist ex-tensor. I had numbness into my fingers and into my right foot. I should mention that in the middle of all of this I learned from trigger point injections that I am severely allergic to medrol and suffer from anaphylaxis. This allergy ruled out epidural steroid injections.

The first neurosurgeon I met with immediately wanted to complete a fusion on both levels at the same time. I then went for a second opinion and was blessed to meet Dr. Cannestra with Lyerly Neurosurgery. He took me in for a stat Microdiscectomy on 1/8/2016 (the very next day after I met him). I had immediate relief and was able to regain strength in my right leg/foot. On 3/17/2016, I had a cervical disc replacement utilizing the Mobi-C. All of my neurological issues have dissipated in my right arm. However, I still suffer from severe muscle spasms and occipital neuralgia.

This summer my husband and I enjoyed a trip to Niagara Falls for our anniversary. It was at this time that I re-herniated my L5/S1. My neurosurgeon felt as though I did too much walking and put too much stress on the disc. He then recommended a new pain management doctor. I began seeing Dr. Christopher Roberts at Jacksonville Spine Center. He tried a procedure called a Dekompressor Wand. This did help relieve the sciatic pain on my left side and I finally regained the urge to urinate after nearly a year of the inability to feel that sensitivity. However, I have seen very little improvement with my right leg/foot and am still suffering from sciatic pain. I have once again been sent for physical therapy (I have well over 40 visits this year alone). I have also been diagnosed with DDD.

Dr. Roberts is also working on the continued headache and muscle spasms that I suffer from in my cervical area. On 11/23/2016 I went through my first round of facet block injections at C2-C5, without steroids, due to my allergy. I did have immediate relief of the spasms and headache. I will again return on 11/30/2016 for another round of facet block injections. If the second round works, then I will most likely undergo radio-frequency lesioning at these levels.

During my visit on November 23rd, after Dr. Roberts said he was going to send me back to the neurosurgeon, I opened the conversation regarding traveling out of country to Germany/Spain for my lumbar issues. I was pleasantly surprised by Dr. Roberts response, as he has had several patients that have traveled to Germany with successful outcomes with ADR on the lumbar spine. He even offered to have a patient of his contact me regarding his surgery in Germany.

I have been completing a ton of research on ADR in both Germany, Spain, and the Netherlands. I contacted and received evaluations back from Ritter-Lang, Bertagnoli, Bierstedt, and Clavel. I spoke to Dr. Zeegers on the phone. His consult costs approximately $1000. I have been able to rule out several doctors based on my research.Dr. Bertagnoli in Germany only offers the Prodisc-L ADR, and I am much more interested in receiving the M6. I have read numerous negative outcomes regarding Ritter-Lang and have ruled out utilizing him. Finally, I have read that Dr. Zeegers takes months to respond to his evaluation, once all paperwork is submitted, although he is a brilliant surgeon. That leaves me with Bierstedt and Clavel. I am honestly leaning towards Clavel, but would love to hear from other members who have experience with either surgeon. This decision is life altering and I want to make the most educated decision possible.

Thank you in advance for all of your valuable input!
__________________
1/8/2016 - Microdiscectomy L5/S1
3/17/2016 - Cervical Disc Replacement C5/C6 (Mobi-C)
10/19/2016 - DeKompressor Wand L5/S1
1/16/2017 - Cervical Radiofrequency Lesioning
3/15/2017 - Dr. Pablo Clavel: Cervical Disc Revision C5/C6 (M6-C) and Lumbar Disc Replacement (M6-L)

Last edited by Nestletea; 11-27-2016 at 09:08 PM.
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  #2  
Old 11-26-2016, 02:12 PM
GirlCaptain GirlCaptain is offline
Member
 
Join Date: Aug 2016
Posts: 44
Default cervical spine

Congrats on getting a Mobi-C. The Radio Frequency Ablation is a great procedure for facet pain, and should help your inflamed fact joints immensely. Good luck with getting that done.
GC
__________________
52 year old female, retired Fire Captain
Whiplash injury in early 20's, years of wearing
leather fire helmets, run down by a car 2008
Herniated Discs C5-6, C6-7
Thoracic outlet syndrome, cervical radiculopathy,
cervical myelopathy
Had 2 level ADR with Mobi-C at UC Davis Medical Center on 9/14/16.
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  #3  
Old 11-27-2016, 08:15 AM
Blizzaga Blizzaga is offline
Senior Member
 
Join Date: Nov 2016
Posts: 129
Default

Hi Nestletea,
I am curious to know what made you decide M6 is better? I was initially open-minded regarding all disc types, and after browsing online, I ended up with the exact opposite conclusion. In the surgical outcome section of this forum I found many M6 outcomes and I did not feel particularly motivated by them... Note, I have not gotten adr myself, so all I can say is what I read.
__________________
2015 Lost ability to sit
2016 Gradually worsening despite conservative treatment
2016 L4-L5, L5-S1 activ L success!
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  #4  
Old 11-27-2016, 08:30 AM
Nestletea Nestletea is offline
Member
 
Join Date: Nov 2016
Posts: 33
Default M6

From what I have read, the cervical M6 sounds like it can cause Hangman's syndrome. I have been reading up on this for days, but am new to all of this. Could you please share your research on the Lumbar M6?

Thanks
__________________
1/8/2016 - Microdiscectomy L5/S1
3/17/2016 - Cervical Disc Replacement C5/C6 (Mobi-C)
10/19/2016 - DeKompressor Wand L5/S1
1/16/2017 - Cervical Radiofrequency Lesioning
3/15/2017 - Dr. Pablo Clavel: Cervical Disc Revision C5/C6 (M6-C) and Lumbar Disc Replacement (M6-L)
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  #5  
Old 11-27-2016, 02:46 PM
Blizzaga Blizzaga is offline
Senior Member
 
Join Date: Nov 2016
Posts: 129
Default

Well, first I must say that I am not qualified to tell anybody what disc to use. There are others on this forum that have probably read much more than I about the subject. But here are some things I found, which I have used to make up my mind:

Manufacturer of M6 giving the benefits compared to some other discs:
http://www.spinalkinetics.com/wp-content/themes/sk/resources/7-Competition.pdf


Dr. Bertagnoli raising much criticism against elastomer discs:
http://www.dr-bertagnoli.com/artificial-disc-replacement-center-of-rotation.html
Correct me if I am wrong, but Bertagnoli does not use elastomer discs?
 
Although, I am not very impressed by prodisc-L either. It has been proven that it loads the facet joints significantly more than movable core discs. This has been shown both in theory:
Comparison of Biomechanical Function at Ideal and Varied Surgical Placement for Two Lumbar Artificial Disc Implant Designs: Mobile-core vs. Fixed-core
https://www.researchgate.net/publication/6078599_Comparison_of_Biomechanical_Function_at_Id eal_and_Varied_Surgical_Placement_for_Two_Lumbar_A rtificial_Disc_Implant_Designs_Mobile-core_vs_Fixed-core
"Placing a mobile-core TDR design anywhere within the disc space reduces facet loading by > 50%, while the fixed-core TDR design increases facet loading by >10% when compared with the intact disc in axial rotation, the worst loading case."

and in vivo:
Effects of lumbar artificial disc design on intervertebral mobility:
in vivo comparison between mobile-core and fixed-core
http://europepmc.org/abstract/MED/21153595
"A prosthesis with a fixed-core increased the VT during flexion–extension motion in comparison to the physiology and mobile-core prosthesis at both L4L5 and L5S1 levels."

 
What do you think about these references?

If anything is certain, it is that there is no such thing as a perfect artificial disc, one just has to weigh the options and take the "least worst one".
__________________
2015 Lost ability to sit
2016 Gradually worsening despite conservative treatment
2016 L4-L5, L5-S1 activ L success!
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  #6  
Old 11-27-2016, 03:05 PM
Nestletea Nestletea is offline
Member
 
Join Date: Nov 2016
Posts: 33
Default Disc Preference

Thank you for providing these articles. I have the spent the afternoon researching discs and now have several reservations regarding M6 design. What is your opinion regarding Activ-L? I am curious as on Dr. Clavel's website it does state that sometimes this is a better option for L5/S1.

I am also curious as to what disc/surgeon you have decided on?

Thanks,

Leanne
__________________
1/8/2016 - Microdiscectomy L5/S1
3/17/2016 - Cervical Disc Replacement C5/C6 (Mobi-C)
10/19/2016 - DeKompressor Wand L5/S1
1/16/2017 - Cervical Radiofrequency Lesioning
3/15/2017 - Dr. Pablo Clavel: Cervical Disc Revision C5/C6 (M6-C) and Lumbar Disc Replacement (M6-L)
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  #7  
Old 11-27-2016, 09:38 PM
Chris9702L Chris9702L is offline
Junior Member
 
Join Date: Jun 2016
Posts: 21
Default

I know both Bierstedt and Clavel also use the Active L. You can contact them and ask their opinion of each disc. Another disc of interest in the Freedom. I would be interested if they have ever used it, reason being is it should be approved in the US next year so if you ever had a problem you could find someone here in the States that is familiar with it.
__________________
1990 - MRI - moderate bulge L4/L5, small bulge L3/L4 (pain in lower back but not down the legs)

after 1990 - would throw out back every year. Spasms, lightning bolts, and crookedness for 3 days followed by tightness for 3/4 days - would recover back to normal in about a week

April 2016 - a small tweek that developed into a full blown throwout is slowly, slowly getting better (back to about 60% in the beginning of Aug)
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  #8  
Old 12-23-2016, 05:12 PM
Nestletea Nestletea is offline
Member
 
Join Date: Nov 2016
Posts: 33
Default M6 vs. ActivL

I want to thank Blizzaga for opening my eyes to some worrisome data regarding the M6 disc. You completely changed my point of view.

I am actively seeing a surgeon in Florida that ran the FDA trials for the ActivL - Dr. Rolando Garcia. I am most impressed with him and will be finishing up a few tests for him, while he works on the insurance end. I have pretty much 99.9% made up my mind that he will be my best option for Lumbar Disc Replacement.

Again, thank you so much!

Leanne
__________________
1/8/2016 - Microdiscectomy L5/S1
3/17/2016 - Cervical Disc Replacement C5/C6 (Mobi-C)
10/19/2016 - DeKompressor Wand L5/S1
1/16/2017 - Cervical Radiofrequency Lesioning
3/15/2017 - Dr. Pablo Clavel: Cervical Disc Revision C5/C6 (M6-C) and Lumbar Disc Replacement (M6-L)
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  #9  
Old 12-25-2016, 12:12 AM
Big_A_2246 Big_A_2246 is offline
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Join Date: Oct 2016
Posts: 64
Default

I'm curious why people are going to other countries for this procedure. I found what I think is a highly trained ADR surgeon in Chicago and from what I've read they are really all over the place now. What am I missing?
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  #10  
Old 12-25-2016, 11:38 AM
phillyjoe phillyjoe is offline
Senior Member
 
Join Date: Jan 2013
Posts: 245
Default

Some folks want the M6, which isn't approved in US yet. Some folks define highly trained by a the surgeon meeting a certain min threshold of devices implanted. Europe has done it longer than in the US but now the US seems to be catching up. Finally, it also comes down to a personal relationship you might develop with your surgeon. Some US docs, though perhaps highly skilled, are quick to abandon you if something goes wrong and send you packing to pain management
__________________
Pre Surgery:
C3-C4:Mild disc osteophytes. Mild-moderate right facet arthrosis. Mild right foraminal stenosis.
C4-C5:Midline central disc protrusion, significant. Mild canal stenosis.
C5-C6:Moderate disc osteophytes. Mild-moderate canal stenosis. Moderate-severe bilateral foraminal stenosis.
C6-C-7:Mild-moderate disc osteophytes. Mild canal stenosis. Moderate left and moderate-severe right foraminal stenosis.
June 29,2016-3 level M6 (C4-C7) Dr. Clavel Barcelona
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