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  #1  
Old 01-05-2020, 10:18 PM
bokes bokes is offline
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Join Date: Aug 2013
Posts: 20
Default my intro & is ADR worth the risk if not in bad pain?

Hi, I'm Rick & have had back problems for 20 years. Fortunately I don't have much pain as long as I'm not going thru a flare-up (my heart goes out to those of you who do have pain). However, my back is very sensitive & will easily go into spasm, so i have to baby it. Here's a few examples:

- I can't play sports, except I can hike & bike a little. Im 50 now & interested in gardening, but leaning forward with my knees on the ground is asking for it.
- To pick something off the floor, I have go down on 1 knee & keep my back perfectly straight.
- Before lifting a grocery bag, I have to make sure my glutes & abs are engaged first.

I was considering ADR back in 2001, but at the time my doc said he didn't like any of the designs. But now they look great, I'm considering a 2 level L3-5 ESP in Europe. I've lived in Germany for years & speak the language well, so going there is not an issue.

I'm curious if any of yous have untergone an ADR operation to improve your quality of life, even if you didn't have significant pain? thanks
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50 yrs old
2001- tore L34 and L45 after chiropractor had me do a cobra stretch during a back strain, became immobile w/ chronic spasms.
2002- IDET from the inventor Dr Saal. Got mobility back, but frequent flare-ups ever since, no sports, no sitting soft chairs/sofa.
Considering ADR in hope of being more active.

Last edited by bokes; 01-05-2020 at 10:34 PM. Reason: typo
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  #2  
Old 01-11-2020, 09:45 PM
Harrison's Avatar
Harrison Harrison is offline
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Join Date: Oct 2004
Posts: 6,907
Question

Hello Bokes, sorry for the late reply. Thousands of patients have had ADR and posted here since 2004. Most people are in deep, complicated pain before they have surgery. Some, less so.

Where are you at in your decision process? And in what state do you reside?
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"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
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  #3  
Old 01-13-2020, 11:49 PM
bokes bokes is offline
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Join Date: Aug 2013
Posts: 20
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Hi Harrison, I'm in the SF Bay area & I'm in research mode. I appreciate this site as there's lots to read & learn. So far in my reading it seems like most of the complications have been from subsidence or misaligned ADRs. I started a thread in the Arthroplasty Forum about the Mazor Robot, which I suspect might help avoid the misalignment risk, but afaik it's not in use yet for ADRs. Since my pain is low, I could wait if there was a killer technology around the corner.
The other option i'm considering is a Transforaminal Discectomy. But since I've already had an IDET on my bad discs, I don't know if they can handle more trauma. I think my doc will order another discogram later this week. yippee
__________________
50 yrs old
2001- tore L34 and L45 after chiropractor had me do a cobra stretch during a back strain, became immobile w/ chronic spasms.
2002- IDET from the inventor Dr Saal. Got mobility back, but frequent flare-ups ever since, no sports, no sitting soft chairs/sofa.
Considering ADR in hope of being more active.
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  #4  
Old 01-14-2020, 05:43 PM
star7 star7 is offline
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Join Date: Jan 2020
Posts: 2
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If youre not in pain Id wait as long as possible. I have pain every single hour of every day. I had lumbar fusion L4-5(2006), lumbar surgery to remove bone spurs(2007), and ADR cervical C5-6(2009). Been dealing with countless syptoms from numbness tingling pain in groin, thigh, hip pelvic, abdomen, ribs, diaphragm the list goes on. I now know that Ive developed adult scoliosis, kyphosis and spodylolthesis since the surgeries. See my pics and youll see screw is coming out of the hardware thats in my neck(i have trouble swallowing and breathing at times). Im now desperate to find a Dr who is trained in removing ADR. If i could go back I would not have done either surgery, just my opinion
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I had Lumbar fusion L4-5 (07/06), lumbar surgery to remove bone spurs (02/07), Cervical disc replacement(Medtronic Prestige 08/09).
I found that they had diagnosed me w/ scoliosis in 2008(but never told me) more recently diagnosed w/osteophytes complex in multiple areas, kyphosis, spodylolthesis &one of the screws in cervical disc replacement is coming loose. Anyone else dealing with hardware failure and/or unexplained similiar symptoms
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  #5  
Old 01-15-2020, 04:44 PM
bokes bokes is offline
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Join Date: Aug 2013
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star7 I'm deeply sorry about your pain, I really hope you can find someone who can get you some relief.
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50 yrs old
2001- tore L34 and L45 after chiropractor had me do a cobra stretch during a back strain, became immobile w/ chronic spasms.
2002- IDET from the inventor Dr Saal. Got mobility back, but frequent flare-ups ever since, no sports, no sitting soft chairs/sofa.
Considering ADR in hope of being more active.
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  #6  
Old 01-18-2020, 06:18 AM
timsdeece timsdeece is offline
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Join Date: Sep 2018
Posts: 34
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You are definitely not a candidate for surgery. Only the vulture clinics will offer you surgery. It may be difficult for you to see, because maybe your friends are more active, but you are already living a life many would dream of post-op. Once you replace your biological discs there's no going back. Anything happens your ADRs it's more surgery as your body doesn't know what to do with them.
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Make sure you are fully aware you cannot delete anything you post on this website. Be very careful with what you post, and consider that while you feel ok to share it now, perhaps in the future you may not want this infromation shared any longer. You have no ability to delete anything and the moderators do not oblige. I encourage you to learn from my mistake and not use any forum that does not allow one to delete content they have shared.
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  #7  
Old 01-18-2020, 03:04 PM
annapurna annapurna is offline
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Join Date: Dec 2004
Posts: 1,594
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Quote:
Originally Posted by timsdeece View Post
You are definitely not a candidate for surgery.

I feel that this is overly simplistic bad advice. Surgery has risks and can make a problem worse or leave you in pain with no recourse. Obviously, because we're talking about getting surgery to fix things, it can also fix problems and leave you in less pain.


There have been posters here who sought surgery due to a quality of life question when their pain wasn't serious. They didn't all regret it. Personally, I'd suggest investigating surgery now, while your pain is manageable, and learning what you need to know to balance how you see risks and how you'd make your decision.


Don't rush off to get surgery once you've learned enough to make that decision but make use of the time while you're not clouded with pain or pain medication to learn enough so you'll be confident of making the right decision. Waiting until you're driven by pain means you'll feel rushed and pressured, which might leave you making a decision before you've learned all you should know.
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Laura - L5S1 Charitee
C5/6 and 6/7 Prodisc C
Facet problems L4-S1
Knee, Shoulder, Toe, Finger, Elbow Problems

Jim - no spine problem but lots of other fun medical challenges

"There are many Annapurnas in the lives of men" Maurice Herzog
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  #8  
Old 01-20-2020, 08:58 PM
Cheryl0331 Cheryl0331 is online now
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Join Date: Dec 2010
Posts: 821
Default Bokes

Glad you found this site. Most people here that had ADR or any surgery for that matter, were in a lot of pain, but moreover, a level if disability. I for one on both counts. Only you and your trusted surgeon can make that decision.
Keep something in mind, we are here to share each others spine history, surgery, and successes as well as struggles.
Unless someone here is actually a doctor of neuroscience or orthopedics and has seen you as a patient, they cannot tell you that you are or are not a candidate for surgery.
__________________
53 yr old 5ft.7in. 141 lbs. non-smoker conservative treatments failed
2007 fusion C4-6 w/peek implants plate & screws, failed due to long term use of cox-2 inhibitor
2008 revised w/donor bone replace plate & screws
2009 fusion Roi-C C3-4
2015 MRI & CT mjr ddd C6-7, segmental kyphosis at C7-T1 2-level ADR with Dr. Clavel Barcelona Spain
2019 some ddd C2-3, but stable, occipital nerve pain , HO behind M6 left C6-7 and in spinal canal. Revision by Dr. Schmitz Dusseldorf Germany
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  #9  
Old 02-25-2020, 02:54 PM
ummin032 ummin032 is offline
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Join Date: Feb 2020
Posts: 7
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I'm in a similiar boat to you. My pain is manageable, but my overall wellness is suffering because of my limitations. I am a 26 year old, former athlete, and have a completely collapsed L5-S1.

Advice that one should wait until the pain is unbearable seems like a major philisophical difference in ones view of life. Being active is major part of my identity, and being physically limited reduces the joy of life for me. Additionally, If you take really good care of yourself right now, that is likely contributing to why your symptoms aren't as bad as others in similiar situations.

With only one life to live, i'm strongly considering the surgery. I'm living the best case scenario without surgery right now, and I personally want more from life. If there are things you're unable to do that you and your surgeon think could be restored with the operation, I would say go for it.

My biggest hesitency at the moment is my age (an artificial disc will have to last me a long time if i live as long as i plan to). Still, I'm exploring all the options and think you should too!
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  #10  
Old 03-03-2020, 07:00 PM
bokes bokes is offline
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Join Date: Aug 2013
Posts: 20
Default Mri

Here's my MRI, if you have any feedback, please feel free to share, thanks
__________________
50 yrs old
2001- tore L34 and L45 after chiropractor had me do a cobra stretch during a back strain, became immobile w/ chronic spasms.
2002- IDET from the inventor Dr Saal. Got mobility back, but frequent flare-ups ever since, no sports, no sitting soft chairs/sofa.
Considering ADR in hope of being more active.
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