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International Assistance Any topics relating to traveling or communicating with international treatment locations are here.


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  #221  
Old 05-17-2016, 06:25 AM
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Cynlite Cynlite is offline
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Thank you Drew and everyone else for your well wishes. They have helped to lift my spirits. I'm still exhausted. Got about one hour sleep last night. I was worried that Dr Clavel would find something new on the updated MRI I sent over just before I jumped on a plane. I just met with him and all went as expected. I am having a three level ADR surgery at C3 through C6. Interesting that Dr Bierstedt and Dr Zeegers did not think the C3/C4 needs to be replaced. The disc looks good but Dr Clavel said that is where I have my worst cord compression. I trust him more. I'm going to put off the L3/L4 fusion because the issues came around the last five years since I have gained weight. I want so badly to move again and the neck issues have made that impossible. I would rather drop the weight and strengthen my core than put the extra pressure on the adjacent discs from a fusion. I hope this is the right decision and my hip pain goes away in time. Dr Clavel said he quit using the Coflex many years ago because it creates kyphosis and yet it is the latest and greatest in the US recommended to me by Dr. Pettine. I see exercise, weight loss and possibly stem cells in my future. That's the plan. Surgery on my neck Thursday a.m. Since I'm not on narcotics, he seems to think they can manage my pain without them. I hope so because I don't want them! It's so strange being here alone. Good thing I know some Spanish. In a few weeks, it should improve because it's all around me here! I love the people and culture here! Next appointment is with the anesthesiologist and then back to the hotel to rest.
__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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  #222  
Old 05-17-2016, 09:22 PM
drewrad drewrad is offline
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Can't wait to see your X Rays. Dr. Clavel is unreal in his placement of the M6s. It always looks amazing.

PM me if you need to talk. Being alone isn't bad if you're built for it. Some people are, some aren't.

Take care.
__________________
Weightlifter since 12 years old, now mid-40's and figuring out this wasn't such a good idea.

Chronic back pain started in 2010 while shrugging weights that a 40 yr. old shouldn't even try.

MRI in 2012 showing L4/L5, L5/S1 herniations and L2/L3 bulge.

L5/S1 taking on new shape, chronic sciatica, etc.

DEXA bone scan performed 5/7/14 showing mild osteopenia.

Surgery performed July 9th, 2014, Dr Clavel, hybrid three level lumbar.
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  #223  
Old 05-18-2016, 03:27 AM
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Cynlite Cynlite is offline
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Thanks Drewrad! I told Dr Clavel again yesterday that I think he is an artist. It is one of the main reasons I flew over here for surgery. X-rays of his work are like no other. I know I am in good hands.

I can handle a lot until the level 10 pain sets in which is exactly what happened yesterday. I waited over 45 minutes outside the hospital for the cab back to my hotel, in the wind, with no where to sit because the only bench is with all the smokers. Hated that! Really had to hold back the tears but I'm still sure I was not a pretty sight. Took a full eight hours of hurry up and wait before that day was done at the hospital uggggggh. Yolanda took the day off so it was not an easy day unfortunately. Seeing the doctor went well which I suppose is what was really important.

Thanks for your support! I'm so looking forward to being on the other side of surgery and moving to the Hilton Diagonal Mar. Being at a full service hotel will be easier on me since I'm traveling alone. I'm looking forward to daily walks along the ocean.
__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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  #224  
Old 05-18-2016, 07:22 PM
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Grover771 Grover771 is offline
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Posts: 174
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Cynlite,
From everything we've read, you are in excellent hands! We're all sending you comforting thoughts and virtual hugs.
Yep, I know we'll meet in person some day soon and share that bottle of wine... Or two.
Go get'em!!

__________________
Deb
___________________________
1988 diagnosed with DDD, bulging
2012 trauma lumbar following yard work
Nov 2012 MRI Bulging discs L4,5, S1
Mild stenosis
Dec-Jan PT
Jan 2013 Discogram
Results Level 5 Annular tears L3-4, L4-5 and L5-S1
Need 3 disc fusion
Facet Joints injections, March 2013- no relief
Transform.., Epidural Injections 4-23-13 Right L2-3 No relief
2nd ESI 5-14-13 L3-4, L4-5, L5-S1 No relief ugh.
ADR L3-4, L4-5, Fusion L5-S1 Fusion Dr.Blumenthal TBI July, 2013
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  #225  
Old 05-23-2016, 09:12 AM
beaverc beaverc is offline
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Posts: 125
Default Cynlite

Cynlite It's 6:05 in the AM and I see you are online , how did your surgery go?? I'm sure it went fantastic , If you can please update. Anxious to here about how it went and how you are doing. Take care.
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  #226  
Old 05-23-2016, 09:24 AM
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Cynlite Cynlite is offline
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beaverc, you are just going to have to pop over to the Post Surgery Forum (for members only) where I've been posting updates since the surgery. Este post se acaba! Cheers.....I'm sure you'll find it
__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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  #227  
Old 05-30-2016, 04:19 AM
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Cynlite Cynlite is offline
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Posts: 666
Default Pamphlet from Dr. Clavel's lobby

Redoing this post later. The images turned out bad. I spent 45 minutes this morning trying to post this information for the Board and finally deleted it because it was so illegible. So, I took my shower and I thought to myself, why am I bothering? I should just leave my hotel and go walk around Barcelona. I have given so much of my time to posting my experiences and research to pay it forward in life and help others I will never meet. Yet, this has been mostly a very isolated experience for me and I wonder if I'm just wasting my time. So, thank you to the people that have responded to my thread. Your interaction has helped me to keep this going and I thank you with all my heart for caring.

There are a handful of members that have REALLY helped me including Harrison and I continue to thank them sometimes over and over just like I do Dr. Clavel. He sort of blushes when I do that which is kind of fun hahahaha. I've made a few really great friends through this board and know we'll continue to talk on the phone, Facetime and email. Being a member of the Spinal Pain Club is kind of like AA. If someone hasn't personally experienced spinal pain, then they just won't get it so we are the best support for each other. I've tried to explain the pain to others close to me but, fortunately, they don't understand and that's a good thing. I try to stay positive but, now that I'm done with my surgery I can say that my life before it was my own personal h*ll. Without others here validating me and trying to help guide me along on this board, I know I wouldn't be where I am today. I'm optimistic about my life going forward again.

I hope that more of you will interact here because it will make a difference to you and to others!
__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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  #228  
Old 06-05-2016, 08:07 PM
Cheryl0331 Cheryl0331 is offline
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Default don't forget

There will come a time when you are feeling so so good, and then you may have this weird anomaly and wonder in the back of your mind what's wrong. I went through so many ups and downs that you have to remember the time when you pain was bad. I know it sounds strange to say that, but it's true. I am just over one year post op and I am 90% better than before, so I have to remember when I felt pain. I thank God for enabling us to fine Dr. Clavel, blessing him with his abilities, and for the success of my surgery! The things that I took for granted before all of this happened to me; life is very different now.
__________________
54 yr old female 5'7" 147 lbs. non-smoker conservative treatments failed
2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor
2008 revised C4-6 donor bone, plate & screws
2009 fusion with Roi-C @ C3-4
2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain
2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal.
2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany
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  #229  
Old 06-11-2016, 09:03 PM
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Harrison Harrison is offline
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Join Date: Oct 2004
Posts: 7,010
Exclamation

You have done an immense amount of research and shared it proactively and carefully. I am sure HUNDREDS of people have or will benefit from it; we all thank you for that!

We are now your family -- you are stuck with us. We are here for you!

PS: Are you two feet taller now?!
__________________
"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
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  #230  
Old 06-12-2016, 04:57 PM
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Cynlite Cynlite is offline
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Posts: 666
Thumbs up Thank you Harrison!

Thank you Harrison, you are really too kind! I trust you and I will remain friends for a long time.

I am taller but, I'm not sure exactly how much yet. I attempted to measure myself but it is not going to be very accurate. I measured 1 1/2" taller. I'll be sure to have my doctor measure me the next time I am at her office. I was told by Dr. Clavel's therapist that after the plates settle in over the next year, I'll lose some of the height I have today. I guess I'll see.
__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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