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The Big File All issues not easily categorized in the above forums are here. Comments on general health, diet, "getting comfortable," and more are here.


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  #21  
Old 07-27-2005, 11:07 AM
Jefferson Jefferson is offline
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everything you see on the KIRO screen is because of my wife. She has worked there for over 23 years. She knows anyone and all. If this is a serious enough of an issue: It goes and it can hit national if she nicely asks....ahem, stomps her feet. Her main boss has 2 blown discs right now and has no idea exactly what to do with the as a matter of fact, early denial stages of what to do what to do... (Pat, don't quote my mispealling ok, I am nediprated) k
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Discogram..S1/L5 disectomy,
3 Level Rizotomy
20 Injections, Foraminal Stenosis
Moderate to Severe, (L) 'They' say that I am @ the end of my road 'What's THAT Mean?? Who are THEY
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  #22  
Old 07-27-2005, 12:48 PM
letteski letteski is offline
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Cat-mt

Do you have the links for these shows that you could post?
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Paulette
ProDisc L5-S1 W/Dr Delamarter Aug 23, 2005
L5-S1 DDD Diagnosis 12/04
T-12 Compression Fracture 10/04
C-7 Spines Process Fracture 5/99
http://prodisc2.blogspot.com/
You are my Rock God in you I can do anything
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  #23  
Old 07-27-2005, 03:28 PM
APS APS is offline
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Hi Everyone,
Thanks for your hard work and time in getting e-mails sent. I'm in too!
How about also writing to Hilary Clinton? She's so into healthcare and it certainly couldn't hurt.
here's her contact info Paulette provided back in June:
http://clinton.senate.gov/email_form.html
Andrea
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Andrea
Grand Junction/Denver, CO

Failed L4-5 diskectomies '93 & '00
ADR originally scheduled 3/9/05; dropped insurance appeal due to new job; new insurance UHC
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  #24  
Old 07-27-2005, 04:13 PM
APS APS is offline
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Update: I sent an e-mail off to Sen. Clinton and received what looked like an automatic response indicating she is not able to respond to anyone outside of New York.
I will send the same e-mail to Colorado senators but maybe someone out there from New York could e-mail her too. I'll even provide e-mail I sent.
Thanks!
Andrea
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Andrea
Grand Junction/Denver, CO

Failed L4-5 diskectomies '93 & '00
ADR originally scheduled 3/9/05; dropped insurance appeal due to new job; new insurance UHC
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  #25  
Old 07-27-2005, 07:59 PM
Patrick Patrick is offline
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Quote:
Originally posted by Jefferson:
[qb] everything you see on the KIRO screen is because of my wife. She has worked there for over 23 years. She knows anyone and all. If this is a serious enough of an issue: It goes and it can hit national if she nicely asks....ahem, stomps her feet. Her main boss has 2 blown discs right now and has no idea exactly what to do with the as a matter of fact, early denial stages of what to do what to do... (Pat, don't quote my mispealling ok, I am nediprated) k [/qb]
Nediprated...is that before or after I become annebriated (spell check?)

Whatever station she works for...I would love to see a story on it. I just got a heads up on my surgery being postponed due to legal mumbo jumbo between the trial and the hospital...go figure
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*10 plus years of back pain
*'99 first MRI shows L4-5 bulge
*'04 MRI shows L4-5 grade 3 annular tear & rupture with moderate DDD
*'05 Discogram shows concordant pain at L4-5
*8/18/05 scheduled ADR surgery participant in Kineflex/Charite study
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  #26  
Old 07-28-2005, 01:36 AM
Kim Kim is offline
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If your wife can get some coverage on this then count me in. I will give her any info I can and I am sure that others here can pipe in too!!! There are so many of us that if they see how many, they would have to be interested in the story I would think
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Kim
Herniated disc L5/S1 2000 Discectomy 10/2003 Rhizotomy 8/2004 and 3/2005Discogram 11/04 grade 7 tear L5/S1
L4/L5 Grade 5 tear with herniation and stenosis
Evaluated by Dr Blumenthal at TBI
2/2005 ADR 2 level recommended
2 level lumbar fusion
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  #27  
Old 07-28-2005, 04:03 PM
Jefferson Jefferson is offline
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Kim or Laura, or whoever seems to be landing as a committe chair - If someone wants to make a master file of sorts...We then could organise these letters and chronologically get things in order and decide how to best present them.

If CBS (KIRO) Here in Seattle was or was not interested, then it still will be presentable for the very next presentation and move on. This is a positive thing that you are doing.

ALL too often do we see the 'passing' of a very small spot of misinformed chronic pain owies, or a charite non fda approved thing just in the blink of an eye. WE ARE DISABLED and need some attention here!

If you would not mind, put the committee together, get the letters organized and get the back to us so that Sandy, my wofe would have something substantial to get to the program directors. It will get an answer when presented in that light, Thank you.
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Discogram..S1/L5 disectomy,
3 Level Rizotomy
20 Injections, Foraminal Stenosis
Moderate to Severe, (L) 'They' say that I am @ the end of my road 'What's THAT Mean?? Who are THEY
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  #28  
Old 07-28-2005, 07:03 PM
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Harrison Harrison is offline
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Folks, I am obviously happy to support the process; just let me know how.

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"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
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  #29  
Old 07-28-2005, 07:25 PM
cervie queen cervie  queen is offline
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What? No one wrote to Oprah? (or did I miss it)
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  #30  
Old 07-28-2005, 10:14 PM
Kim Kim is offline
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We all wrote to Oprah previously and no one has gotten any response that I know of so far. We all wrote Montel and various other TV personalities.
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Kim
Herniated disc L5/S1 2000 Discectomy 10/2003 Rhizotomy 8/2004 and 3/2005Discogram 11/04 grade 7 tear L5/S1
L4/L5 Grade 5 tear with herniation and stenosis
Evaluated by Dr Blumenthal at TBI
2/2005 ADR 2 level recommended
2 level lumbar fusion
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