ADRSupport Community  

Go Back   ADRSupport Community > General Discussion > The Big File

The Big File All issues not easily categorized in the above forums are here. Comments on general health, diet, "getting comfortable," and more are here.


Reply
 
Thread Tools
  #1  
Old 04-26-2005, 01:14 AM
Kim Kim is offline
Senior Member
 
Join Date: Apr 2005
Posts: 267
Default

Hi
I got an idea while watching Montel today. There was a seg on a congressman who had cancer and was cured by an experimental drug. He has gone on to become an advocate of those who need the same type meds but cannot afford them or cannot get insurance to pay for them. He has set up a program that has drug companies involved to help pay for or provide free of charge meds for those who need them.
Montel is a chronic pain sufferer also. I got the idea to contact him and the congressman and tell them of all of us who are waiting for ADR and our insurance companies wont pay for the surgery.
I figure it cant hurt to send an email or make a phone call to see if they are interesed in our problems.
WE might get some media coverageo or some proessure placed on our ins to approve us who knows?
I want numbers so that I can tell them how many of us are out there in the same boat. I want them to know this is a wide spread problem and many people are suffering because beaurocrats at the insurance companies are stalling.
Speak up if you are in the same boat I am or if anyone has numbers or stats please share.
Feel free to give me ideas on this if you have them.
Thanks
__________________
Kim
Herniated disc L5/S1 2000 Discectomy 10/2003 Rhizotomy 8/2004 and 3/2005Discogram 11/04 grade 7 tear L5/S1
L4/L5 Grade 5 tear with herniation and stenosis
Evaluated by Dr Blumenthal at TBI
2/2005 ADR 2 level recommended
2 level lumbar fusion
Reply With Quote
  #2  
Old 04-26-2005, 01:42 AM
Cat-mt Cat-mt is offline
Member
 
Join Date: Mar 2005
Posts: 52
Default

I have an idea, we could call our doctors office and ask how many patients are waiting for insurance approval. Since we don't need names they should be able to tell us a number. Because there are so many of us on this site, and we all have different doc's so if we listed the what we find we could have a bunch of different numbers. Cathy
__________________
Lumbar pain after 2 MVA's Numerous blocks and epidur's 2 discograms IDET July 2003 L4/L5 & L5/S1.
Reply With Quote
  #3  
Old 04-26-2005, 06:24 AM
biffnoble biffnoble is offline
Senior Member
 
Join Date: Feb 2005
Posts: 401
Default

Guesstimate:

50-100 ADR's. 1.5 ADR's per patient = 75 patients +-.

Many have ins., few have ins. that will cover diddly. Maybe we should lobby the Federal government for low cost loans to pay for surgery and indemnify us for costs related to surgery, or legislation that requires ins. cos. and HMO's to cover after care.
__________________
Cervical ADR of interest.
Reply With Quote
  #4  
Old 06-10-2005, 08:34 PM
bclervi bclervi is offline
Junior Member
 
Join Date: Jun 2005
Posts: 4
Default

I am just learning how this site works Kim. I already email you. I will do anything to help. What are your thoughts as to where we should move from here?

Thanks, Becky
__________________
Becky
Reply With Quote
  #5  
Old 06-11-2005, 10:11 AM
Harrison's Avatar
Harrison Harrison is offline
Administrator
 
Join Date: Oct 2004
Posts: 6,917
Default

Kim, it's an ambitious idea. I assume that there are thousands of people, perhaps tens of thousands, that are in need of some kind of arthroplasty. To get an accurate number would take many months of research! But the idea is noble, let me know if I can help...

PS: The people on this site represent a very, very small number of pre and post op patients; though I think it is the most concentrated, interactive ADR patient community in the world - more than 40 countres have visited!
__________________
"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
Reply With Quote
  #6  
Old 06-11-2005, 06:18 PM
Kim Kim is offline
Senior Member
 
Join Date: Apr 2005
Posts: 267
Default

Update
I have written Montel and my congressmen and senators asking that something be done about this. I have invited all of them to come to this site and others and read about what we are going through so they can see that this is a BIG issue in this country. I understand this is an ambitious thing and maybe nothing will come of it but then again maybe something will. You NEVER know til you try
I encourage all others to do the same. Write Montel, write your congressman, write your senator. Let them know that there are all of us out here who are in pain and do not have to be! If they get a lot of letters maybe they will sit up and listen!
Kim
__________________
Kim
Herniated disc L5/S1 2000 Discectomy 10/2003 Rhizotomy 8/2004 and 3/2005Discogram 11/04 grade 7 tear L5/S1
L4/L5 Grade 5 tear with herniation and stenosis
Evaluated by Dr Blumenthal at TBI
2/2005 ADR 2 level recommended
2 level lumbar fusion
Reply With Quote
  #7  
Old 06-11-2005, 06:29 PM
letteski letteski is offline
Senior Member
 
Join Date: Mar 2005
Posts: 814
Default

I wrote Oprah no responce. May try again.
__________________
Paulette
ProDisc L5-S1 W/Dr Delamarter Aug 23, 2005
L5-S1 DDD Diagnosis 12/04
T-12 Compression Fracture 10/04
C-7 Spines Process Fracture 5/99
http://prodisc2.blogspot.com/
You are my Rock God in you I can do anything
Reply With Quote
  #8  
Old 06-13-2005, 02:33 PM
Paul Paul is offline
Member
 
Join Date: Oct 2004
Posts: 57
Default

2 level for me. Insurance denied
Reply With Quote
  #9  
Old 06-14-2005, 03:53 PM
amanda amanda is offline
Junior Member
 
Join Date: Jun 2005
Posts: 15
Default

I think it is a wonderful idea. I just called Betty at Texas Back Institute. She said that conservatively there are 100-150 people waiting for United Health Care to cover ADR. Just like my husband, they are all suffering tremendously in the meantime. I'm all for putting these Insurance Companies on the spot. The appeal process is a hoax. I've been seriously thinking of contacting Michael Moore. He is great at shaking things up! I am totally in. Please keep me posted!!
Reply With Quote
  #10  
Old 06-14-2005, 04:14 PM
letteski letteski is offline
Senior Member
 
Join Date: Mar 2005
Posts: 814
Default

amanda,

Call Michael Moore! What a great idea anyone have his number? No worries I found it the "Moore" emails the better!

Michael Moore
__________________
Paulette
ProDisc L5-S1 W/Dr Delamarter Aug 23, 2005
L5-S1 DDD Diagnosis 12/04
T-12 Compression Fracture 10/04
C-7 Spines Process Fracture 5/99
http://prodisc2.blogspot.com/
You are my Rock God in you I can do anything
Reply With Quote
Reply

Bookmarks

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Getting comfortable while waiting go*big*red The Big File 2 09-21-2006 02:59 PM
Any idea if BC of CA w/pay for ADRs? ans The Big File 2 08-19-2005 08:22 PM
FINDING NUMBERS-WHAT WORKS, WHAT DOESNT BRENDAWY The Big File 0 07-05-2005 10:17 AM


All times are GMT -4. The time now is 06:15 PM.


© Copyright 2006-2017 ADRSupport.org All rights reserved.