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International Assistance Any topics relating to traveling or communicating with international treatment locations are here.


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  #231  
Old 06-14-2016, 01:42 PM
Cynlite's Avatar
Cynlite Cynlite is offline
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Join Date: Mar 2015
Posts: 666
Red face Private Messages

Since my surgery three weeks ago, I have received many private messages from people with lots of questions. I'm glad that my threads are reaching so many people! I think it's important to help others in life and I wish I could help everyone. Unfortunately, I've been pretty sick since I got home and am also recovering from a three level artificial disc replacement surgery. While the recovery is going as expected, I really need to rest and since it's very hard for me to turn people away and ignore their messages, I have allowed my mailbox on the ADR Board to fill up to capacity. This means I will not be able to answer any new private messages for the time being while I take this time to heal.

If you have questions for Dr. Clavel, I highly encourage you to contact him through his website. This time of year is an extremely busy time for them plus, he's a doctor in high demand so, please be patient. I know it is hard to be patient but, trust me when I and others before me here say that he is worth it! Plus, I'll add that it's not just him! He has an amazing team of people supporting him and his work at an outstanding private hospital known to be one of the best.

http://www.doctorclavel.com/en-us

Here is a link to a thread I built last year about "Mindfulness and Meditations." Most of us pain patients really hate hearing that it is a psychological issue. I know it made me pretty angry when anyone even suggested it because I knew the debilitating pain was caused from my extremely screwed up neck. However, over the years I learned that I really had to have a lot of control over my emotions to bring my pain levels down. The difference between a level 7 pain and level 10 pain is pretty big! Don't ever underestimate the power stress has over your body and health. Here's a link to my thread and I hope it helps at least one person out there:
https://www.adrsupport.org/forums/sh...ad.php?t=13200

I'll continue to post updates in the Post Surgery Forum. If you are lurking here and haven't joined the Board, I highly recommend you join so, you can access the areas for members only. This is a private community of people sharing research, experiences and information you won't find on Facebook or anywhere else.

Wishing you good health and a pain free day,

Cynlite
__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016
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  #232  
Old 06-17-2016, 11:08 AM
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Cynlite Cynlite is offline
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Join Date: Mar 2015
Posts: 666
Exclamation Pamphlet Dr. Clavel

This is the best I could do with this pamphlet I picked up at Dr. Clavel's office in Barcelona while I as there. The pictures either ended up being too big or too small when I reduced them for this board so, I chose the thumbnails to get them all in one place. If you double click on the image, it will enlarge it so you can see it better.

On one page, Dr. Clavel mentions how they don't disturb the nerves which is why there is less post operative pain. This is really important!!! Two of my foraminotomies from Dr. Jho were horrific afterwards. They did disturb the nerves and told me just to deal with it. "Oh, it was probably just some nerve damage during the surgery, it will go away." I am not exaggerating when I say I couldn't move for a week without screaming and sometimes just moaning while taking the absolute maximum amount of Percocet a person can take in a 24 hour period. It took about a month for the damage to my nerves to completely heal. Waking up from surgery from Dr. Clavel was a piece of cake compared to so many things I've had done to me. I'm still in awe.

P.S. I get an error message when I try to open these pictures on my iPad but, they open fine on my computer.











__________________
2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined.
2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009.
2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures.
2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016

Last edited by Cynlite; 06-21-2016 at 11:51 AM.
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  #233  
Old 12-02-2016, 06:08 PM
Cheryl0331 Cheryl0331 is offline
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Join Date: Dec 2010
Posts: 854
Default all I know is...

If my husband needs something more done with his L4/5 after this micro discectomy heals? I will sell a kidney to get him to Dr. Clavel in Spain!
__________________
53 yr old female 5'7" 141 lbs. non-smoker conservative treatments failed
2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor
2008 revised C4-6 donor bone, plate & screws
2009 fusion with Roi-C @ C3-4
2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain
2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal.
2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany
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  #234  
Old 12-03-2016, 12:06 PM
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scoop302 scoop302 is offline
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Join Date: Oct 2012
Posts: 193
Default

I am going to assume the price of your kidney fluctuates with the exchange rate?!
__________________
1979 car accident: rear ended
1980 ACDF C4-5
4/8/11 stopped, hit again
3 epidurals, PT, 2 MRI's,etc.
scheduled 3 times for C5-6, 6-7 fusion,
plus laminectomy at C3-4, and C 7, advised to do Bilateral lamino-foraminotomy C5-6, C6-7,a Percutaneous Discectomy L4 -L5
7/14 RFA on L3 to L5 (awake, local only)
C5-6,6-7 M-6 ADR with Dr. Clavel 9/17/14,
12/7/15 RFA L2-S1, Facet injections C2-7
6/3/16 RFA L2-S1, epidural L4,5, 8/26/16 RFA C1-7
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  #235  
Old 12-04-2016, 01:21 PM
Cheryl0331 Cheryl0331 is offline
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Join Date: Dec 2010
Posts: 854
Default Dah

heck ya it does! I give my kidneys cranberry juice everyday. Of course sell high by low, right?
__________________
53 yr old female 5'7" 141 lbs. non-smoker conservative treatments failed
2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor
2008 revised C4-6 donor bone, plate & screws
2009 fusion with Roi-C @ C3-4
2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain
2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal.
2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany

Last edited by Cheryl0331; 12-04-2016 at 01:22 PM. Reason: Typo and addendum
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