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New Member Introductions If you just joined, please introduce yourself here. Please add a signature describing your spinal history (use the "User CP) and ask us how we can help you get started. |
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#1
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New member
I am a member of Spine Health and was on the internet looking for more information and came across your website.
Here is my background: Spinal stenosis, spondolysis, spondolythesis, L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion with instrumentation and bone graft from hip, L1/S1 fusion with replacement disc and a nice bolt from my spine to my pelvis; PT, accupuncture, prolotherapy, many cortisone injections, 4 rhizotomies. Currently on neurontin, Tylenol 3, ativan, lexapro, ambien, voltaren. Have had 12 other major surgeries. That said I was looking for information on SI joint fusion as I have SI joint dysfunction. My SI received quite a bit of trauma when I was knocked unconscious by a snowboarder. Since then my spine has deteriorated over the years. Now I have a block of bone (I am really good at building bone) sitting on top of my SI causing problems. I have had the gold standard for SI joint dysfunction: 2 separate cortisone injections into each SI joint that brought relief. What caught my eye on this site was that CindyLou had had SI joint fusion and I wanted to learn more from her. I know there are very few surgeons who do SI surgery. My very fine spine surgeon does not. Jani |
#2
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Jani,
Wow! That's an impressive x-ray you've got there. Did all of that start because of one snow skiing accident? The SI joint fusion issue is mentioned here occasionally; thought I can't recall the handle's of any poster that's had it. Good luck and please keep us posted. Jeff
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C4/5 - ACDF in 2000 C5/6 - ACDF in 2002 C3/4 & C6/7 - M6 ADR, Nov 2009, Barcelona Conceded defeat to a manifestly disingenuous BCBS-TX in my quest for reimbursement, Jan 2011 |
#3
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Hi Jeff, Yes it was all from one out of control snowboarder. I was what stopped him at the bottom. I was not even on skis, just walking back to the children's center from taking a late child to class. When I came to I could not feel my legs, I thought I was paralyzed. My spine was even more crooked before the 2nd surgery. The surgeon was able to straighten it a bit but I still lost 1/4" in height. I am only 5'1" so losing any height is not a good thing!! I know there is someone on this site who has had a SI joint fusion because that is how I found the site. Jani
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#4
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Jani, did you send a private message to CindyLou yet? Let me know if you need help...
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"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#5
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Hi Jeff,
I just did. Thank you!! Jani |
#6
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Great, thanks.
(Richard)
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"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#7
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oops
Sorry about that Richard.
Are you a cat person? jani |
#8
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No worries at all. I am/was until Harrison died. I may have to change my screen name. Considering a new cat or dog. Any way, back to you...what's the latest?
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"Harrison" - info (at) adrsupport.org Fell on my ***winter 2003, Canceled fusion April 6 2004 Reborn June 25th, 2004, L5-S1 ADR Charite in Boston Founder & moderator of ADRSupport - 2004 Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006 Creator & producer, Why Am I Still Sick? - 2012 Donate www.arthropatient.org/about/donate |
#9
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no news here
I have not heard from CindyLou but someone from SpineHealth who is also on this forum said they had seen her post elsewhere.
I will see my pm doc on thurs and talk about whats next. I already have a plan figured out but will run it by her. Its not going to be easy to find a SI joint specialist. I have 5 cats, I can send you one!! jani |
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