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New Member Introductions If you just joined, please introduce yourself here. Please add a signature describing your spinal history (use the "User CP) and ask us how we can help you get started. |
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#11
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Hi Jeff, yes I have to agree with that. My physiatrist at HSS recommends that I get the nerve under control, but so far, not have given me injections and medication, neither of which has helped. I have to reach out to other surgeons such as Dr Clavel. In the meantime, this is difficult to live with. Mike
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#12
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#13
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I just returned to the US last Friday after a 2-level ADR with Dr Clavel in Barcelona on January 10th and he & his team are AMAZING. He not only has time for you before he has "your business" and is doing the phone/Skype consult, but also when you have your pre-op, the morning of the operation and your post-op. For my post-op, he had a full waiting room (it was actually pretty funny as 1/2 of us had neck braces on) and he still totally took his time with me and answered each & every question my husband & I had. It is not AT ALL like American care where you are just a number.
Yolanda (his assistant) is very helpful and Laia, the physical therapist, comes to your hotel after you are discharged from the hospital and works with you. She has magic hands! I did not have one negative experience with any one on staff at the hospital - everyone was very pleasant and supportive. I highly recommend you talk to Dr. Clavel. I am sure there are many other good surgeons out there, but I honestly don't think you can do better than Dr. Clavel.
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-Amy Car acccident 4.11.11 - damaged c 3/4, 4/5 & 5/6 pain in neck (ha), right shoulder, arm & tingling hand 2-level cervical ADR (c 3/4 & c 4/5) with Dr. Clavel in Barcelona on January 10, 2013 |
#14
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Hi Jeff, well I FedExed my MRI to Dr Clavel and he will have it on Monday. It seemed impossible to upload on the website they have for patients, but that is a nice touch to have your own log in. He will have recent x rays and the MRI so now I mucst awai the recommendation. A physiatrist I saw at HSS this week said that if the Gabapentin, the physical therapy and some possible injections don't work....then she would recommend a fusion! When I asked about ADR, she said. I was not a candidate. Well is that trus or do we just prefer fusion in the USA? She said something about arthritis in my lumbar....well there is not much disk left so doesn't a replacment make sense? What do I know? Let's see what Dr Clavel has to say. Another forum member was very happy with Dr Bierstedt in Germany, but although he seems less well know than Clavel but I cannot base a decision on that. By the way,the DVD produced by the founder of this forum is very good; he was kind enough to send it to me right away! Anyway, thank you all for listening any any input is greatly appreciated. Mike
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#15
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Amy; i just saw your post and that is most helpful and reassuring. I am anxiously awaiting to hear from Dr Clavel. Yolanda has been corresponding with me and has kept me on track to provide that Dr Clavel needs to make his diagnosis. I did not realize that I might have a Skype call....that would be great. In the meantime, I need to something soon. While I think of it, I should add my history to my signature....soon! Thanks for your comments! I hope that I have such a great experience. Mike
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#16
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German docs
Hey mike! Any news. I'm in new York also and have been in contact w clavel and beirstedt. Tough decisions to make. Has your physiatrist helped you at all? That's one thing I wanted to try. You also may want to look into dr zeegers I had a long phone talk with him for free great guy lots of experience. Stay strong!
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L5 S 1 herniation burning feet groin pain. Undisgnosed for months finally getting answers. |
#17
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They are running behind. Still playing catch up from the holidays. You should hear from them soon.
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Multiple traumas to spine starting age 13. 1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4. Surgery w/ Dr. Clavel, 3/18/13, M6. Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's. At time of surgery: 5 yrs MAX before ending up in wheelchair. Clavel found L5-S1 partially fused. Had to cut it apart to put in M6. Please excuse brevity - SEVERE carpel tunnel. |
#18
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I am not really comfortable with the idea of finding out after the surgery what procedure was actually done on me. So I asked for some additional feedback. I read that some people have had Skype calls with Dr Clavel but they have not offered this to me yet. I will Google the name of Dr Zeegers and see if I can find him. Thank you for the feedback. Mike
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Feb 2011; X-ray + diagnosis; Spinal Stenosis Physical Therapy + Oral Steroids March 2011: MRI April 2011: 2 level laminotomy; L4/L4 & L5/S1 More PT, pain meds and injections. ...and 2014, still researching ADR. February 2014: endoscopic foraminotomy, Dr Bitan Last edited by MikeC; 02-16-2013 at 02:26 PM. Reason: Spelling errors |
#19
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Zeegers, as of not too long ago, was at the Beta Klinik in Cologne. He's still listed as a consultant on their webpage but I don't know what that means about his practicing there. Kopf, Wirbelsäule, Gelenke, Gefäße - Beta Klinik - Internationale Privatklinik Bonn
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Laura - L5S1 Charitee C5/6 and 6/7 Prodisc C Facet problems L4-S1 General joint hypermobility Jim - C4/5, C5/6, L4/5 disk bulges and facet damage, L4/5 disk tears, currently using regenerative medicine to address "There are many Annapurnas in the lives of men" Maurice Herzog |
#20
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Zeegers
wzeegers@zeta.demon.nl. I'm not sure what hospital he is working out of but he's a very nice guy he called me on a sunday afternoon after I emailed him my situation the day before. He asked to hear my entire story then asked a ton of questions and said the diagnosis it the hardest and most Important part. He then emailed me a ton of questions etc to send back to him. He said "I need to know everything about you" lol. Call was no charge. So it's at least another opinion from a guy that's done thousands of procedures.
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L5 S 1 herniation burning feet groin pain. Undisgnosed for months finally getting answers. |
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