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New Member Introductions If you just joined, please introduce yourself here. Please add a signature describing your spinal history (use the "User CP) and ask us how we can help you get started.


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  #21  
Old 02-09-2013, 09:29 PM
Lillyth's Avatar
Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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Yeah, I am pretty excited! I tell you, March 18th can't come fast enough!

I already had my phone consultation with him. He is wonderful!

DO be aware that they are still behind from the the holidays (apparently Europe shuts DOWN during any holiday), so it will take longer than usual fro you to get a reply, but you will get one.

Hang in there. I know it is hard. I want my answers NOW, damnit!
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #22  
Old 02-10-2013, 12:12 AM
Boxer78 Boxer78 is offline
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Join Date: Feb 2013
Posts: 393
Angry

Yea the waiting game is brutal especially when docs r telling me they can't explain my pain and symptoms. I've heard nothing but good things about him so I'm looking forward to picking his brain when I talk to him. Yolanda seems very nice also and has responded to my emails. Keep me posted)
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L5 S 1 herniation burning feet groin pain. Undisgnosed for months finally getting answers.
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  #23  
Old 02-10-2013, 12:24 AM
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Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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I will!

I feel ya. My American surgeon is baffled by the fact that laying down makes my pain worse. BOTH docs. One of them keeps asking "And you've tried a cervical pillow?" (I have, MANY of them, and finally found one that doesn't hurt me as much as the others.) It is always disconcerting when the "specialist" shakes his head as says "I don't know. The only thing I can possibly think of is that when you lay down the disc is being pressed farther into the spinal cord, causing you more pain. But cervical patients usually feel BETTER when they lay down."

But at least this one had the good grace to tell me, after he gave me my grim lifetime-of-pain prognosis if we want to save my spinal cord (as stay out of a wheelchair) by doing a laminoplasty (which would save my cord, but do nothing for the pain) because the ossification was so bad, to not start freaking out and getting depressed until I consulted with the European docs because they were the "experts" (his exact phrase) and might very well be able to do things that he could not. Turns out Dr. Clavel looked at my X-Rays and he can fix me up just fine.

I would be very surprised if Dr. Clavel didn't have some answers for you.
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #24  
Old 02-10-2013, 02:33 AM
Boxer78 Boxer78 is offline
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Join Date: Feb 2013
Posts: 393
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That's insanity!!!!! It's so true they have no common sense! When u lay down different forces are being put on ur c spine just like when we have lumbar pain from sitting!! It's like basic kinesiology and I'm no where near an MD and I can understand these things! But at least he had the guts to tell you about overseas docs. Amazing how clavel reads ur images like the Sunday paper but our docs are like hmmmm???? My last doc told me "there are still things we just don't know" are u kidding me?? A guy w burning tingling legs groin feet etc. but at least we can look forward and realize we have a future
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L5 S 1 herniation burning feet groin pain. Undisgnosed for months finally getting answers.
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  #25  
Old 02-13-2013, 03:31 AM
Lillyth's Avatar
Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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I will say in this doctor's favor, I am not a typical presentation of ANYTHING. In my husband's words, when I was trying to decide on a surgeon, "Honey, why are we even THINKING about anyone other than Dr. Clavel? I love you darling, but nothing about you is ever straightforward. You've always been a special case. That's why I love you." LOL!

But seriously, that is one of the reasons I chose him. People like you and I are special cases. Doing six levels is NOT the norm. Neither is your sexual dysfunction. What we need is a doctor who understands our problems can can fix them. Not someone who will send you in for yet another prostate exam.

Although, I have to agree with you. Simple kinesiology. At least, if one THINKS, rather than spits back what was memorized in a book.
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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