ADRSupport Community  

Go Back   ADRSupport Community > General Discussion > The Big File

The Big File All issues not easily categorized in the above forums are here. Comments on general health, diet, "getting comfortable," and more are here.


Reply
 
Thread Tools
  #1  
Old 01-07-2014, 05:17 PM
JJames JJames is offline
Senior Member
 
Join Date: Nov 2008
Posts: 102
Question Recommendation(s)?

Hello all,

I need to find the "best" spine surgeon practicing in the Northeast U.S. as soon as possible. I do realize that particular opening sentence is in many ways a non-starter as a post, so perhaps I should state that I am at least seeking "recomendations" from the many experienced people as to who I should try and seek out.

Although my quality of life is just as terrible as it has been, now I am facing unemployment in about 10 months - the company for which I'd worked for over 25 years has been sold. I MUST address my back issues while I have some financial means and medical insurance, as no one in their right mind would hire me as a new applicant with my current medical issues (I wouldn't!)

I am not educated or wealthy enough to be particularly "picky". My most significant issues have always been at my two adjacent lumber disc levels L4/5 and L5/S1. They are both torn. I am open to two-level fusion, two-level ADR, or a Hybrid - as long as the surgeon is confident enough to make me feel so as well. I am strongly leaning towards a location/surgeon somewhere in the Boston area, as I have visited several New York City surgeons previously (in addition to 3 in Connecticut where I live). I cannot fathom nor afford the medical tourism route.

I am not ignorant enough to believe in perfection: perfect surgeon, perfect procedure, perfect outcome, perfect anything! I have got to do something, and the time is now. All my time and energy spent attempting to research via other sources have gotten me nowhere.

I believe the group of people on these boards have far more "real life" information than just about anywhere else I could possibly look. If anyone has any suggestions in regards to a surgeon I should specifically look into, please let me know.

Thank you in advance - Jeff
__________________
DDD diagnosed ~99
Chronic Pain since Aug 2006
Failed L4 Microdisctectomy Apr 2007
2008-Positive Disco (L4/L5&L5/S1 annular tears)
Herniated discs at L4/L5/S1, bulging T12
Began constant/severe neck & upper back pain 11/09
Jan 10-Cervical/Thoracic MRI:bone spurs+new disc probs
Cervical Spine issues causing terrible pain beginning in July 2021 - scheduled for 2 level C-Spine ADR on Oct 19th 2021 now!! Part of Clinical Trial so unsure if Mobi-C or Baguera C will be implanted ....
Reply With Quote
  #2  
Old 01-07-2014, 05:30 PM
jss's Avatar
jss jss is offline
Senior Member
 
Join Date: Nov 2009
Posts: 1,411
Default

Jeff,

Condolences on an unfortunate situation.

Fabian Bitan is a spine surgeon in NYC whose name, in positive terms, comes across this forum perodically.

Good luck, Jeff
__________________
C4/5 - ACDF in 2000
C5/6 - ACDF in 2002
C3/4 & C6/7 - M6 ADR, Nov 2009, Barcelona
Conceded defeat to a manifestly disingenuous BCBS-TX in my quest for reimbursement, Jan 2011
Reply With Quote
  #3  
Old 01-07-2014, 05:47 PM
JJames JJames is offline
Senior Member
 
Join Date: Nov 2008
Posts: 102
Default Thanks, Jeff

Thank you, Jeff.

Yes, I recall reading his name in other posts. He will be next name I start with my "Search" within the forums, and then start looking further ... I'd forgotten about him - perhaps due to the fact I was trying to avoid another visit to New York City, but that isn't a very logical reason!

Thanks again - Jeff
__________________
DDD diagnosed ~99
Chronic Pain since Aug 2006
Failed L4 Microdisctectomy Apr 2007
2008-Positive Disco (L4/L5&L5/S1 annular tears)
Herniated discs at L4/L5/S1, bulging T12
Began constant/severe neck & upper back pain 11/09
Jan 10-Cervical/Thoracic MRI:bone spurs+new disc probs
Cervical Spine issues causing terrible pain beginning in July 2021 - scheduled for 2 level C-Spine ADR on Oct 19th 2021 now!! Part of Clinical Trial so unsure if Mobi-C or Baguera C will be implanted ....
Reply With Quote
  #4  
Old 01-07-2014, 11:38 PM
bwink23 bwink23 is offline
Senior Member
 
Join Date: Nov 2013
Posts: 263
Default

James.....

I understand your need to rush.

If i was you and wanting to get it done ASAP...I would contact Texas Back Institute, send them your films and let them know it's urgent. When i reached out to them i got a response by phone that same day. If you want a disc, you WILL get a Prodisc. IF you want it covered by insurance, they will give you the best possible chance of coverage due to there extensive, long term experience with the procedure. You can see if your insurance will pre-authorize it. Get it scheduled, buy a ticket, fly over there and get it done.
__________________
2013 - MRI and CT scan....DDD L4-S1
left side (where my pain is) interarticularis pars fracture/defect with Spondylolithesis L5 over S1 with 2MM anterior displacement

Feb. 2014 - Hybrid lumbar fusion(l5/S1), ADR(L4/L5)...2-level cervical ADR (C5/C6, C6/C7). Dr. Pablo Clavel of Quiron Hospital in Barcelona, Spain. All M6 implants (PEEK cage and plate from Medtronic at fusion level in lumbar.) SAME DAY OPERATION for both areas of the spine.
Reply With Quote
  #5  
Old 01-08-2014, 12:45 AM
Stonewall_Boris Stonewall_Boris is offline
Senior Member
 
Join Date: Feb 2013
Posts: 547
Default

One of the US doctors I consulted with was Egon Doppenberg. Leading Medical Offices and Hospitals in Chicago | NorthShore
He was very good at explaining the pros and con's of ADR vs anterior fusion vs posterior fusion.
I was given his name by a family medical connection.

I did an edit and included some of his points. Sorry for the bad formatting.
> 1. 3 level total disc arthroplasty to replace 3 discs. This is a surgery
> through your abdomen that has pros and cons, including an approximately 2-5
> percent chance if permanent sexual dysfunction in men. Also, there is a very
> small risk of life threatening injury to the major vessels including aorta
> and iliac veins
> Downside is that revision surgery can be very complicated if you do not have
> good relief of pain.
> Advantage is mobility, less chance of other discs becoming problematic in
> the future.
>
> 2.
> Anterior lumbar interbody fusion.
> Same as 1. Except the vertebrae are fused and there is a more predictable
> outcome. . Downside is slightly reduced mobility ( which you may have
> already to begin with) same complications as 1.
>
> 3. Transforaminal interbody fusion with posterior instrumentation.
> Through the back. No risk of complications as described above.
> Does require possibly slightly more recovery time, but outcome is more
> predictable. Again you will lose some mobility, with approximately 5 percent
> chance of developing trouble at other levels in your life.

Last edited by Stonewall_Boris; 01-08-2014 at 01:36 AM. Reason: update
Reply With Quote
  #6  
Old 01-10-2014, 12:41 PM
Dema Dema is offline
Senior Member
 
Join Date: Jul 2013
Posts: 169
Default Northest surgeons!

Hi JJames, I saw many spine specialists in NYC-NJ-PA area, and liked the following:
- Dr. Fabian Bitan (NYC), actually scheduled surgery with him for Cervical Hybrid (Prodisc+Fusion), but backed out as I am now seeking the M6 instead, means outside the US, unfortunately!
- Dr. Roger Hartl (NYC)
- Dr. Alexander R. Vaccaro (Philadelphia)
Currently working with Dr. Carl Lauryssen (Los Angeles) who would use the M6 but surgery will be in Switzerland

Wishing you relief soon,
Dema
__________________
7/2007 Whiplash injury
11/2009 Cervical disc herniation C3-C6 (C5-C6 worse)
2010-2013 Conservative treatments (drugs, PT, epidurals, prolotherapy, acupuncture...etc)
, little effect on pain
Considering surgery (typical questions, which type & which surgeon!)
Reply With Quote
  #7  
Old 01-10-2014, 02:51 PM
JJames JJames is offline
Senior Member
 
Join Date: Nov 2008
Posts: 102
Default Thank you

bwink23, Stonewall_Boris, & Dema,

Thank you all for your replies, thoughts, and suggestions. Dr Bitan is currently in the lead within this thread. I started some other research on him, but need to check the most important: If he's in my new medical insurance provider network! LOL.

I so wanted to avoid another NYC trip! During my last trip there to consult with a different surgeon, there was actually an attempt by two strangers to abduct my daughter. That's still not my reason for avoiding NYC, as I've been there quite frequently before and after that horrible experience on my own for business.

Texas Back Institute (TBI) has always been very high (perhaps top) on my list when money and time weren't quite as pressing considerations for me. I really like the idea of having a surgeon who is capable at performing all possible surgical options on me, and is able to make me feel confident in the one chosen (even if it turns out to be incorrect). I'm not sure how I could obtain the confidence, information, tests, "gut feeling", etc I need to proceed with a surgeon so far away without having to make several flights back-and-forth. At minimum it seems there would need to be one for a consult and another for the actual surgery. I'm not certain how any/all additional tests, scans, and so on are handled and paid for ...

I was really hoping that there may be some recommended surgeons in Boston, MA. MA General Hospital and Brigham & Women's Hospital have been suggested as highly regarded surgical locations by some medical professionals I've asked, but they were unable to provide specific doctors ....

Thank you all once more - Jeff
__________________
DDD diagnosed ~99
Chronic Pain since Aug 2006
Failed L4 Microdisctectomy Apr 2007
2008-Positive Disco (L4/L5&L5/S1 annular tears)
Herniated discs at L4/L5/S1, bulging T12
Began constant/severe neck & upper back pain 11/09
Jan 10-Cervical/Thoracic MRI:bone spurs+new disc probs
Cervical Spine issues causing terrible pain beginning in July 2021 - scheduled for 2 level C-Spine ADR on Oct 19th 2021 now!! Part of Clinical Trial so unsure if Mobi-C or Baguera C will be implanted ....
Reply With Quote
  #8  
Old 01-10-2014, 08:19 PM
NJ Gene NJ Gene is offline
Senior Member
 
Join Date: Feb 2013
Posts: 376
Default Found a spine surgeon in Boston

JJames,

When I was considering ADR, I looked at surgeons throughout the United States and Europe. One I was considering was Dr. Paul Glazer, who practices out of Beth Israel Deaconess Medical Center in Boston Spine Surgeon, Neck & Back Surgeon - Boston, MA 02215 - Home

I'm live in the NYC area, so I ended up staying local. As it turned out I didn't need ADR. I saw excellent reviews of him on Healthgrades.com and on Doctor Reviews and Doctor Ratings | Compare & Find Doctors | Vitals

Good luck!!

Gene
__________________
Car Accident 2002 - Small Herniated Disc C3/C4
1998 Larger Herniation and Cervical Fusion C3/C4
2005 Herniation C4/C5 - 40 epidural steroid injections from Oct 2005, - Oct, 2007
2008 - Foraminotomy at C6/C7 on left side
Feb, 2010 - Cervical Fusion C4/C5
Dec, 2010 - Lumbar Fusion L3/L5
2013 - Bulge on C5/C6; herniation C6/C7 right side
Mar 26, 2013 - Foraminotomy at C6/C7 on right side
May 5, 2015 - ADR with Dr Blumenthal of TBI for C5/C6 using Mobi-C
Reply With Quote
  #9  
Old 01-13-2014, 01:38 PM
JJames JJames is offline
Senior Member
 
Join Date: Nov 2008
Posts: 102
Default Dr Paul Glazer

Thank you for the suggestion, Gene.

So far what little research I've had time to conduct on Dr Glazer has been very positive, and he even appears to accept my medical insurance. I am a bit hesitant though, as from what I've read so far on him, he does not perform any disc replacements - only fusions. I'd really like to have a surgeon who can suggest/perform any of the three surgical possibilities for me.

Thank you again - Jeff
__________________
DDD diagnosed ~99
Chronic Pain since Aug 2006
Failed L4 Microdisctectomy Apr 2007
2008-Positive Disco (L4/L5&L5/S1 annular tears)
Herniated discs at L4/L5/S1, bulging T12
Began constant/severe neck & upper back pain 11/09
Jan 10-Cervical/Thoracic MRI:bone spurs+new disc probs
Cervical Spine issues causing terrible pain beginning in July 2021 - scheduled for 2 level C-Spine ADR on Oct 19th 2021 now!! Part of Clinical Trial so unsure if Mobi-C or Baguera C will be implanted ....
Reply With Quote
  #10  
Old 01-13-2014, 06:38 PM
NJ Gene NJ Gene is offline
Senior Member
 
Join Date: Feb 2013
Posts: 376
Default

JJames,

I believe Dr. Glazer does some ADR, but I believe it's only in the cervical region, which doesn't help you. I think Texas Back Institute may be your best bet. I believe someone else already suggested that on this thread. Besides being some of the top ADR doctors in the U.S., several of them are in-network. Furthermore, I have family in Plano, TX and they've used TBI for less invasive procedures. They were very pleased with them.

Good luck with whoever you choose!!

Gene
__________________
Car Accident 2002 - Small Herniated Disc C3/C4
1998 Larger Herniation and Cervical Fusion C3/C4
2005 Herniation C4/C5 - 40 epidural steroid injections from Oct 2005, - Oct, 2007
2008 - Foraminotomy at C6/C7 on left side
Feb, 2010 - Cervical Fusion C4/C5
Dec, 2010 - Lumbar Fusion L3/L5
2013 - Bulge on C5/C6; herniation C6/C7 right side
Mar 26, 2013 - Foraminotomy at C6/C7 on right side
May 5, 2015 - ADR with Dr Blumenthal of TBI for C5/C6 using Mobi-C
Reply With Quote
Reply

Bookmarks


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Book Recommendation cls The Big File 2 01-18-2009 09:52 PM
need recommendation for primary dr in orange county, ca LBP The Big File 8 09-07-2008 12:47 PM
Glucosamine recommendation anyone? annapurna The Big File 10 03-06-2005 05:56 PM


All times are GMT -4. The time now is 08:37 AM.


© Copyright 2006-2023 ADRSupport.org All rights reserved.