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  #21  
Old 02-16-2013, 02:20 AM
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Lillyth Lillyth is offline
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Join Date: Nov 2012
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Quote:
Originally Posted by MikeC View Post
Hello Boxer, I would have relied soon but I am traveling and just saw you comments. I am seeing a physiatrist from HSS who has prescribed Gabapentin and physical therapy. The first session of PT made me feel worse for the rest of the day, but the Gabapentin seems to help a bit. Dr Clavel's office wrote back indicating that he would like to try a 2 level ADR, but if, during the the surgery, the ADR did not seem appropriate, he would do a fusion.

I am not really comfortable with the idea of finding out after the surgery what procedure was actually done on me. So I asked for some additional feedback. I read that some people have had Skype calls with Dr Clavel but they have not offered this to me yet.

I will Google the name of Dr Zeegers and see if I can find him. Thank you for the feedback. Mike
Has he looked at your films yet?
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #22  
Old 02-16-2013, 11:43 AM
MikeC MikeC is offline
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Originally Posted by Lillyth View Post
Has he looked at your films yet?
Hello, yes Dr Clavel has a recent MRI on a CD and also x-rays. He is proposing a telephone. Consultation at 180 Euros later this week. Thanks for the info on Zeegers. I will definitely write to him today.
__________________
Feb 2011; X-ray + diagnosis; Spinal Stenosis
Physical Therapy + Oral Steroids
March 2011: MRI
April 2011: 2 level laminotomy; L4/L4 & L5/S1
More PT, pain meds and injections.
...and 2014, still researching ADR.
February 2014: endoscopic foraminotomy, Dr Bitan
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  #23  
Old 02-16-2013, 12:58 PM
JeffR JeffR is offline
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Join Date: May 2012
Posts: 356
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FYI a Zeegers consult is very involved which is good, but it is correspondingly expensive.
__________________
Lifelong history of back issues from a young age, spasms etc.
1995 - Weightlifting injury
1997 - Hip Injury
2009 - Trampoline injury (just bounced down on my butt)
2009-2011 Physiotherapy and medication, progress but no lasting pain relief
2010 - X-Ray DDD L5-S1, L4-L5, L4-L3
2010 - MRI Herniation L5-S1, Bulges L4-L5, L4-L3
2011 - Epidurals - No relief
2012 - Facet Injections - No relief
2012 - Discogram TBI - positive L3-S1

L3-S1 ADR M6-L w Clavel 11/28/2012
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  #24  
Old 02-16-2013, 04:26 PM
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Lillyth Lillyth is offline
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Quote:
Originally Posted by MikeC View Post
Hello, yes Dr Clavel has a recent MRI on a CD and also x-rays. He is proposing a telephone. Consultation at 180 Euros later this week. Thanks for the info on Zeegers. I will definitely write to him today.
That's weird he wouldn't know if it would be an ADR or a fusion. Is he worried about facet damage?
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #25  
Old 02-18-2013, 12:31 AM
MikeC MikeC is offline
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Join Date: Jan 2013
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Quote:
Originally Posted by Lillyth View Post
That's weird he wouldn't know if it would be an ADR or a fusion. Is he worried about facet damage?
Hi Lilith, he did not say why a fusion might be necessary, only that he would make that determination during surgery. I'll know more after my telephone conversation on Thursday. I am on 3 x 800 mg of Gabapentin. Dr Zeegers called that "poison"! Well I guess that European doctors do not see exactly eye to eye with their American counterparts. More to follow on Thursday. Mike
__________________
Feb 2011; X-ray + diagnosis; Spinal Stenosis
Physical Therapy + Oral Steroids
March 2011: MRI
April 2011: 2 level laminotomy; L4/L4 & L5/S1
More PT, pain meds and injections.
...and 2014, still researching ADR.
February 2014: endoscopic foraminotomy, Dr Bitan
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  #26  
Old 02-18-2013, 12:33 AM
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Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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Great. Please do keep us updated!
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #27  
Old 02-18-2013, 12:35 AM
MikeC MikeC is offline
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Join Date: Jan 2013
Posts: 72
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Quote:
Originally Posted by JeffR View Post
FYI a Zeegers consult is very involved which is good, but it is correspondingly expensive.
Jeff, yes he called me today and dropped the number on me. I am wondering what to do as Dr Patrick O'Leary in NY, (ex head of spine surgery at HSS and now in private ), charges $500 for a consultation. He does not take insurance but he does ADR... I have many options and must narrow them down or this will start to get expensive. Mike
__________________
Feb 2011; X-ray + diagnosis; Spinal Stenosis
Physical Therapy + Oral Steroids
March 2011: MRI
April 2011: 2 level laminotomy; L4/L4 & L5/S1
More PT, pain meds and injections.
...and 2014, still researching ADR.
February 2014: endoscopic foraminotomy, Dr Bitan
Last edited by MikeC; 02-18-2013 at 12:36 AM. Reason: Spelling and grammar
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  #28  
Old 02-18-2013, 12:46 AM
MikeC MikeC is offline
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Join Date: Jan 2013
Posts: 72
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Originally Posted by Boxer78 View Post
Hey mike! Any news. I'm in new York also and have been in contact w clavel and beirstedt. Tough decisions to make. Has your physiatrist helped you at all? That's one thing I wanted to try. You also may want to look into dr zeegers I had a long phone talk with him for free great guy lots of experience. Stay strong!
Hello Boxer, Dr Zeegers called me today after my e-mail from Friday....very efficient. He is quite adamant about doing a very thorough diagnosis and what he say makes sense...but it seems that an office visit would be the best. If I agree, then he would send an 18 page questionnaire for me to complete...and then later a 12 page questionnaire. Then on a Skype video call he will ask you to do certain movements. Well I am mulling this over as there is a high cost involved of course. He does not seem to be pushing for any surgery and has many years of experience. Does any one have more experience with Dr Zeegers? Thanks, Mike
__________________
Feb 2011; X-ray + diagnosis; Spinal Stenosis
Physical Therapy + Oral Steroids
March 2011: MRI
April 2011: 2 level laminotomy; L4/L4 & L5/S1
More PT, pain meds and injections.
...and 2014, still researching ADR.
February 2014: endoscopic foraminotomy, Dr Bitan
Last edited by MikeC; 02-18-2013 at 12:48 AM. Reason: Too one sentence to clarify
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  #29  
Old 02-18-2013, 01:48 AM
Boxer78 Boxer78 is offline
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Join Date: Feb 2013
Posts: 393
Default Zeegers
Hey great news! I just finished the paperwork he sends and will be sending it out this week. I feel like his opinion is priceless even though the consult is a little pricey. U should def get his opinion and go from there.
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L5 S 1 herniation burning feet groin pain. Undisgnosed for months finally getting answers.
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  #30  
Old 02-18-2013, 08:30 AM
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TPatti TPatti is offline
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Join Date: Jan 2013
Posts: 491
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Dr. Dare in England had told me that he would decide on one of levels being a fusion or adr during operation as well. He said it would depend on much much movement he was able to get.

How much is the Zeegers consult?
__________________
*9/10: Unstable pelvis & SI joint, sore IT band. Chiro care, I would shift out hours to days after adjust
*12/10: PT & chiro
*4/11 to 11/11: 5 sessions prolo and 3 prolo w/ PRP
*12/28/11 ESI L L4/L5 - 1/13/12 ESI R L4/L5 - 1/24/12 L SI joint capsule - 3/8/12 TPI - 3/23/12 L L5/S1 - 4/11/12 ESI caudal - 5/23/12 TPI - 7/10/12 Facet inj L3/L4, L4/L5, L5/S1
*9/12/12: 30 - DRX9000
*12/21/12 schedule. for L4/L5 fusion-CANCELLED 1/7/13
*7/16/2013: 3 level M6(S1-L3) w/ Dr. Bierstedt
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