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  #11  
Old 07-03-2018, 01:00 PM
marcus60486 marcus60486 is offline
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Join Date: Jun 2018
Posts: 13
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My first consultation has been done with Bierstedt. His opinion on my symptoms is that they are atypical and cannot be directly related to the structural and nerve related issues in my spine.

ADR cervical and lumbar is required and he would be pleasantly surprised if the symptoms improve but he skeptical, as he cannot directly relate them to the spine damage.

I was hoping for definitive answer, but am hopeful I will be blessed with full recovery in all areas.
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #12  
Old 07-06-2018, 11:06 AM
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Harrison Harrison is offline
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Join Date: Oct 2004
Posts: 6,894
Post Unusual symptoms

Marcus,

If you still hunting for a diagnosis, consider getting a good Lyme doctor -- no easy feet. The better ones use this company for blood testing:

https://igenex.com/ticktalk/category...ic-approaches/

I had similar symptoms to you back in 2005. My illness turned out to be from hospital-acquired infection, which somehow alluded over 20 different doctors. It turned out to be mycoplasma pneumonia. I was dying for two years, slowly, and I had to figure it out myself. If I didn't, I'd be dead.

Please see my research and documentary site:

https://www.whyamistillsick.com/

I'd be happy to help if I can!
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"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
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  #13  
Old 07-08-2018, 09:23 PM
marcus60486 marcus60486 is offline
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Join Date: Jun 2018
Posts: 13
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No kidding?! I have never considered Lyme disease...I have never been in the hospital for any kind of duration.

Is there any other way to contract Lyme aside from infection and tick bites?

I'll take a read of those links shortly.

Thanks for the reply....I may PM you for more details.
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
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  #14  
Old 07-08-2018, 09:46 PM
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Harrison Harrison is offline
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Posts: 6,894
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Lyme disease transmission continues to be taboo. Or ignored by the media. And the CDC.

But the reality is that that there are many forms of the bacteria that Borrelia can take (known as phenotypes). In my film at the UNH lab, David shows us the many forms:

https://www.youtube.com/watch?v=fJqTDnbL7Yo

Syphilis is a STD, right? The Treponema pallidum microbe is very similar to Borrelia. Yet the CDC states that Lyme cannot be transmitted by saliva or sex, but they never explained how or why this can be possible. Nor does Consumer Reports, who provides the worst and most unreliable information on Lyme (and vaccinations) of any national publication.
__________________
"Harrison" - info (at) adrsupport.org
Fell on my ***winter 2003, Canceled fusion April 6 2004
Reborn June 25th, 2004, L5-S1 ADR Charite in Boston
Founder & moderator of ADRSupport - 2004
Founder Arthroplasty Patient Foundation a 501(c)(3) - 2006
Creator & producer, Why Am I Still Sick? - 2012
Donate www.arthropatient.org/about/donate
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  #15  
Old 07-12-2018, 12:35 PM
marcus60486 marcus60486 is offline
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Join Date: Jun 2018
Posts: 13
Default Desai

Well...I finally heard back from Dr.Desai suggesting replacement at:

- C4/5, C5/6, C6/7
- L4/5, L5/S1

There are herniations with nerve impingement at all levels noted above. I have to wait until August for a further consultation with him, as he is currently on holidays.

After that, I will make the decision and book the flights! 5 level replacement is a huge deal and far bigger than I wanted or expected.

Please let me know is anyone one has done this with the ESP discs.
__________________
31 year old Canadian

- Car Accident 2007 and 2017
- 3 work injuries 2011-2012
- DDD at C5/6, C6/7, L4/5, L5/6
- Extra vertebrae at L6.

Desperate for solutions!
Reply With Quote
  #16  
Old 06-16-2019, 11:19 AM
JohnT JohnT is offline
Junior Member
 
Join Date: Jun 2019
Posts: 13
Default

Severe on MRI diagnosis is a sure sign for surgery. Looking for ADR myself.
Any follow up?
PS Canadian so going through similar conundrums
__________________
[SIZE="1"]Canadian - ADR not available in Canada
L4/S1 DDD since 1994 - right side sciatica
L4/L5 herniation and discectomy in 2006 - success
2017 bilateral and sacral pain and numbness, cannot sit
Dec 2017 L4/S1 (2 levels) Interspinous implant (IntraSpine Cousin Biotech) - no result
permanent pain and numbness
Narrow spinal canal, scarring, L5/S1 started autofusing
Implant must be removed, decompression needed
Decision time - discussed with Dr B, Rischke, Desai
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  #17  
Old 06-17-2019, 05:51 PM
nihs nihs is offline
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Join Date: Sep 2014
Posts: 7
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I would advise not to go with Clavel. He botched up my surgery and they will not respond or give run you arounds when you contact them afterwards. I will be posting story here shortly.
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C3-C4: 2mm central protrusion
C4-C5: 1mm central protrusion w/ annular tear
C5-C6: Disk mildly narrowed; 1.5mm central protrusion; Uncovertebral joint spurs that mildly narrow right and moderately narrow the left nueral foramina
C6-C7: Disk mildly narrowed; extensive modic type II endplate changes; 3 mm central protrusion which extends into the uncovertebral joint spurs; Moderate canal stenosis. Uncovertebral joint spurs that moderately narrow the neural foramina bilaterally.
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