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#31
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"I started suspecting they may be caused by trigger-points in the neck muscles referring pain into head.
This is so true! It's really hard to pin down what causes the headaches but the trigger points do have something to do with it some of the time. I just scheduled an appointment with my Pain Specialist to now jab me with needles in the Thoracic area of my back to try and release the spasms. I know from seeing a neuromuscular massage therapist in the past that there is a point in my mid-back that when she got it to release, she also got the headaches to go away temporarily. Sadly, fighting the muscle spasms is an ongoing war. I am hopeful that the ADR surgery will fix all the interrelated issues. Until then, I go through my check list of traction, working pressure points, hydration, needle work from pain specialist, deep breathing, and the radio frequency ablation of my facet joints and lastly drugs. Did you move forward with the stem cell treatment? Hope you are finding answers!
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2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined. 2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009. 2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures. 2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016 |
#32
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Another duplicate!
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2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined. 2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009. 2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures. 2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016 Last edited by Cynlite; 03-17-2015 at 06:13 PM. Reason: Duplicate |
#33
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Weird! I waited over 10 minutes for my post to show up because it wasn't there. Now it is showing up as a duplicate. This is the deleted duplicate since I can't delete it!
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2006: epidural shots did nothing; 2 surgeons recommended 2 level fusion, I declined. 2007 - 2010 4 foraminotomy and cord decompression cervical surgeries and 2 endoscopic discectomy T7-T8 surgeries; total 6 with Dr. Jho (Pittsburgh,PA) My C6/C7 autofused around 2009. 2013 - 2015: epidurals 3 times (again did nothing) and 4 Radiofrequency ablation (or RFA) procedures. 2016 more RFAs, hit the 10 year mark of this insanity and pain, 3 level M6-C ADR with Dr. Clavel May 19, 2016 Last edited by Cynlite; 03-17-2015 at 05:17 PM. Reason: Duplicate post |
#34
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what do you mean by
Quote:
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54 yr old female 5'7" 147 lbs. non-smoker conservative treatments failed 2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor 2008 revised C4-6 donor bone, plate & screws 2009 fusion with Roi-C @ C3-4 2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain 2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal. 2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany |
#35
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Looks like I may be getting the surgery in Germany after all. Does anyone recommend flying in at an earlier date to allow time to adjust for jet lag? If I'm having surgery on, say, the 10th, should I leave on the 7th or 6th to adjust? Germany is 6 hours ahead of me. I didn't k ow if 2 or 3 days was enough time.
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12/5/13: Cord compression and myelopathy at c6/c7 As well as cord compression at c5/6 - few symptoms 9/4/14: slight progression in compression as well as chronic headaches. 11/28/14: seeking 2 level adr overseas 2015: Successfully received 2 M6c implants from Dr. Bierstedt 2017: No symptoms, neck is 100% and fully back to training! |
#36
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If you can I would recommend getting in at least 3 day before. I say this because it gives you a buffer if any problems arise with flight delays and a chance for you to get settled and rested before a major surgery. I planned on arriving 4 days before but my connection was in Chicago, is there any need for me to keep explaining I was happy to have the 3 days we ended up getting. My wife and I took the train to Cologne one day and saw the Cathedral, Lindt chocolate factory, spent some tome along the shore of the rivers, and had a very nice lunch.
If you would like to contact me about specifics such as things your supporting partner can do and evening places to go the last few days if able besides Medicos shoot me a PM.
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*9/10: Unstable pelvis & SI joint, sore IT band. Chiro care, I would shift out hours to days after adjust *12/10: PT & chiro *4/11 to 11/11: 5 sessions prolo and 3 prolo w/ PRP *12/28/11 ESI L L4/L5 - 1/13/12 ESI R L4/L5 - 1/24/12 L SI joint capsule - 3/8/12 TPI - 3/23/12 L L5/S1 - 4/11/12 ESI caudal - 5/23/12 TPI - 7/10/12 Facet inj L3/L4, L4/L5, L5/S1 *9/12/12: 30 - DRX9000 *12/21/12 schedule. for L4/L5 fusion-CANCELLED 1/7/13 *7/16/2013: 3 level M6(S1-L3) w/ Dr. Bierstedt |
#37
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with all due respect
Harrison,
I understand your concern for medical care outside the US. I have been an US Army dependent wife; and I have had surgery in Panama Central America and Germany. My care in Germany was excellent. My doctors were not English or American. May be they don’t need malpractice there because they do it right the first time. Can you sight anyone that has been paralyzed or died here from having seen either Bierstadt or Clavel? You also forget; there are those of us here on this site that have prior fusion and need more than two levels done, so no option here in the US. I don’t want a Mobi-c that is going to cause more adjacent level stress. I need the most shock absorption I can get. I recently had a US doctor want to put a Bryan under my fusion, remove my plate and screws, possibly takedown the fusion at my C 5/6 just to get to a bone spur, and said he would check the PEEK cage at C ¾ to see if it was loose from not having fused. WOW! Doctors here that are that aggressive may have need for malpractice because that surgery would be very risky! Let us not forget also that doctors here only sell what they are trained to do, or will be paid for by the insurance companies. What happened to “the Patient Bill of Rights”? Why didn’t my US surgeon tell me that there were other options rather than fusion? I could have had a 2 level ADR back in 2008. Now I am sitting here with this domino affect………………………………. So I will go to Germany or Spain. Thank you very much!
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54 yr old female 5'7" 147 lbs. non-smoker conservative treatments failed 2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor 2008 revised C4-6 donor bone, plate & screws 2009 fusion with Roi-C @ C3-4 2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain 2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal. 2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany |
#38
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Cheryl,
Well said. My previous US doctors NEVER mentioned ADR. They also NEVER educated me the sightest about DDD, until it got too late. I honstly believe some of them want you to get worse.
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46yo, DDD of L4-S1. Microdiscectomy L5-L4 in 2014. L4-L5-S1 M6 ADR with Dr. Clavel - June 2015. |
#39
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me too
Quote:
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54 yr old female 5'7" 147 lbs. non-smoker conservative treatments failed 2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor 2008 revised C4-6 donor bone, plate & screws 2009 fusion with Roi-C @ C3-4 2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain 2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal. 2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany |
#40
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I figure I'd better make am informed choice this time
Hi Romakis, People like us only have one more shot to get this right!
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54 yr old female 5'7" 147 lbs. non-smoker conservative treatments failed 2007 fusion @ C4-6 peek cages, failed due to long term use of cox-2 inhibitor 2008 revised C4-6 donor bone, plate & screws 2009 fusion with Roi-C @ C3-4 2015 MRI & CT mjr ddd @ C6-7, segmental kyphosis at C7-T1, 2-level M6-C prosthesis by Dr. Clavel Barcelona Spain 2019 H.O. formed behind M6-C @ C6-7 left nerve rt & in spinal canal. 2020 Revision C6-7 to a CP-ESP prosthesis by Dr. Schmitz Dusseldorf Germany |
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