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  #21  
Old 02-27-2013, 06:37 PM
Lillyth's Avatar
Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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Any news Grover?
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #22  
Old 02-27-2013, 07:21 PM
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Grover771 Grover771 is offline
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Posts: 174
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Quote:
Originally Posted by Lillyth View Post
Any news Grover?
I spoke to someone on another board that had a 3 level ADR at L3 thru L5, here in the states! He had it in 2009 from a Dr. In CT. He said he's doing great, and that, maybe because it was Workmans Comp, that the surgery was paid for entirely. I looked at the ProDisc website and found a trained Dr. here in Fl.
I looked at his vitae and it looks like he's familiar with the Dr. In CT and seems to promote his philosophy of "each patient is unique." I'm really excited to see him on Monday. I'd contacted an Orthopedic here in Tampa, (which is opinion#3) and sent them my MRI and Discogram reports. they called today to tell me that he looked at my reports and said I wasn't surgery material and to just have PT and pain management. Why does everyone want you to just get addicted to narcotics? I just don't understand. I've come to really believe that my pain is caused by the Grade 5 tears and that the fluid us leaking out excessively and agitating the nerves. It doesn't feel like bone pain. I'm hoping (and praying hard) that the doc on Monday will tell me I'm a candidate for ADR and be this over with.

Thanks Lillyth, for checking on me.
__________________
Deb
___________________________
1988 diagnosed with DDD, bulging
2012 trauma lumbar following yard work
Nov 2012 MRI Bulging discs L4,5, S1
Mild stenosis
Dec-Jan PT
Jan 2013 Discogram
Results Level 5 Annular tears L3-4, L4-5 and L5-S1
Need 3 disc fusion
Facet Joints injections, March 2013- no relief
Transform.., Epidural Injections 4-23-13 Right L2-3 No relief
2nd ESI 5-14-13 L3-4, L4-5, L5-S1 No relief ugh.
ADR L3-4, L4-5, Fusion L5-S1 Fusion Dr.Blumenthal TBI July, 2013
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  #23  
Old 02-27-2013, 07:23 PM
Lillyth's Avatar
Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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You are most welcome!

Worker's Comp pays for this stuff, but insurance won't.

I really hope this new doc can help you. A tear is not a pretty thing.

Keep us posted!
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #24  
Old 02-27-2013, 09:16 PM
TPatti's Avatar
TPatti TPatti is offline
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Join Date: Jan 2013
Posts: 491
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Quote:
Originally Posted by Grover771 View Post
I spoke to someone on another board that had a 3 level ADR at L3 thru L5, here in the states! He had it in 2009 from a Dr. In CT. He said he's doing great, and that, maybe because it was Workmans Comp, that the surgery was paid for entirely. I looked at the ProDisc website and found a trained Dr. here in Fl.
I looked at his vitae and it looks like he's familiar with the Dr. In CT and seems to promote his philosophy of "each patient is unique." I'm really excited to see him on Monday. I'd contacted an Orthopedic here in Tampa, (which is opinion#3) and sent them my MRI and Discogram reports. they called today to tell me that he looked at my reports and said I wasn't surgery material and to just have PT and pain management. Why does everyone want you to just get addicted to narcotics? I just don't understand. I've come to really believe that my pain is caused by the Grade 5 tears and that the fluid us leaking out excessively and agitating the nerves. It doesn't feel like bone pain. I'm hoping (and praying hard) that the doc on Monday will tell me I'm a candidate for ADR and be this over with.

Thanks Lillyth, for checking on me.
Sounds like that doc and one of the ones I saw should go to lunch together
__________________
*9/10: Unstable pelvis & SI joint, sore IT band. Chiro care, I would shift out hours to days after adjust
*12/10: PT & chiro
*4/11 to 11/11: 5 sessions prolo and 3 prolo w/ PRP
*12/28/11 ESI L L4/L5 - 1/13/12 ESI R L4/L5 - 1/24/12 L SI joint capsule - 3/8/12 TPI - 3/23/12 L L5/S1 - 4/11/12 ESI caudal - 5/23/12 TPI - 7/10/12 Facet inj L3/L4, L4/L5, L5/S1
*9/12/12: 30 - DRX9000
*12/21/12 schedule. for L4/L5 fusion-CANCELLED 1/7/13
*7/16/2013: 3 level M6(S1-L3) w/ Dr. Bierstedt
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  #25  
Old 02-27-2013, 09:32 PM
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cfbugsbunny cfbugsbunny is offline
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Join Date: Apr 2009
Posts: 168
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As far as pain management goes, for what its worth, in both of my last two spine surgeries i was on 4mg hydromorphone before i went overseas. I have also been on Avinza (time release morphine). There are definitely some strong pain meds that may help you. The tradeoff is as mentioned earlier... bowels tend to slow down and it would definitely impact your ability to work.
__________________
Mark
July 2009: Two level ADR performed at Stenum Hospital in Germany. Spinal Kinetics M6 - Dr. Ritter Lang

March 2011: Removal of previous M6 due to auto-fusing over implants. Fusion at C5-7 and new M6 ADRs at C4-5 and C7-T1 with Dr. Clavel

January 2013: Lumbar surgery with M6-L at L3-5 and single level BalanC at L2-3 with Dr. Clavel

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  #26  
Old 02-28-2013, 09:21 PM
Grover771's Avatar
Grover771 Grover771 is offline
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Join Date: Jan 2013
Posts: 174
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Quote:
Originally Posted by cfbugsbunny View Post
As far as pain management goes, for what its worth, in both of my last two spine surgeries i was on 4mg hydromorphone before i went overseas. I have also been on Avinza (time release morphine). There are definitely some strong pain meds that may help you. The tradeoff is as mentioned earlier... bowels tend to slow down and it would definitely impact your ability to work.
The Vicodin certainly doesn't take the pain away, but at least lets me get some work done. Waiting for the Lyrica to start working. Heard it could be a few weeks.
__________________
Deb
___________________________
1988 diagnosed with DDD, bulging
2012 trauma lumbar following yard work
Nov 2012 MRI Bulging discs L4,5, S1
Mild stenosis
Dec-Jan PT
Jan 2013 Discogram
Results Level 5 Annular tears L3-4, L4-5 and L5-S1
Need 3 disc fusion
Facet Joints injections, March 2013- no relief
Transform.., Epidural Injections 4-23-13 Right L2-3 No relief
2nd ESI 5-14-13 L3-4, L4-5, L5-S1 No relief ugh.
ADR L3-4, L4-5, Fusion L5-S1 Fusion Dr.Blumenthal TBI July, 2013
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  #27  
Old 03-01-2013, 02:37 AM
Lillyth's Avatar
Lillyth Lillyth is offline
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Join Date: Nov 2012
Posts: 679
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Quote:
Originally Posted by Grover771 View Post
The Vicodin certainly doesn't take the pain away, but at least lets me get some work done. Waiting for the Lyrica to start working. Heard it could be a few weeks.
Man, I'm really glad I didn't use Lyrica to come down off of Fentanyl then! I don't want to be on it that long even! (I know it *may* be longer, I just don't want it to be.)

I hope it starts working quickly though. You deserve some relief!

BTW, in case this helps your ability to go overseas, once you spend 10% of your income on medical expenses, everything else is tax deductible. My husband and I are taking a loan for a portion of the surgery, knowing full well it will be a lean year for us financially, but also knowing we will be able to pay off the loan with next years tax return.

Just wanted to mention that in case it was an option for you.
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #28  
Old 03-04-2013, 09:32 PM
Grover771's Avatar
Grover771 Grover771 is offline
Senior Member
 
Join Date: Jan 2013
Posts: 174
Default

Had my appt with the 3rd Doc (ortho) today. They seem to think my pain could be caused by the facet joints and corresponding nerves. Like Jeff mentioned early on, they are recommending Facet joint injections. I'll have the Left on Friday , the Right on the next Friday, and then a Lumbar ESI on the third Friday. We mentioned that we were told an ESI is only for leg pain..but they said not ALL cases..and that I could be that small percent.

So..at least I found someone who is willing to try something! Praying that it will work.
__________________
Deb
___________________________
1988 diagnosed with DDD, bulging
2012 trauma lumbar following yard work
Nov 2012 MRI Bulging discs L4,5, S1
Mild stenosis
Dec-Jan PT
Jan 2013 Discogram
Results Level 5 Annular tears L3-4, L4-5 and L5-S1
Need 3 disc fusion
Facet Joints injections, March 2013- no relief
Transform.., Epidural Injections 4-23-13 Right L2-3 No relief
2nd ESI 5-14-13 L3-4, L4-5, L5-S1 No relief ugh.
ADR L3-4, L4-5, Fusion L5-S1 Fusion Dr.Blumenthal TBI July, 2013
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  #29  
Old 03-05-2013, 03:58 AM
Lillyth's Avatar
Lillyth Lillyth is offline
Senior Member
 
Join Date: Nov 2012
Posts: 679
Default

I hope so! What is an ESI?

I will be thinking about you for the next two Fridays!
__________________
Multiple traumas to spine starting age 13.
1st American to have 6 ADR's in one surgery. C3-4 - C/7, & L5-S1 - L3-4.
Surgery w/ Dr. Clavel, 3/18/13, M6.
Before surgery: severe spinal stenosis C5/C6 (cord "flattened" per stateside doc), + for Hoffman's & Babinsky's.
At time of surgery: 5 yrs MAX before ending up in wheelchair.
Clavel found L5-S1 partially fused. Had to cut it apart to put in M6.
Please excuse brevity - SEVERE carpel tunnel.
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  #30  
Old 03-05-2013, 08:10 AM
TPatti's Avatar
TPatti TPatti is offline
Senior Member
 
Join Date: Jan 2013
Posts: 491
Default

Guessing Epidural Steroid Injection
__________________
*9/10: Unstable pelvis & SI joint, sore IT band. Chiro care, I would shift out hours to days after adjust
*12/10: PT & chiro
*4/11 to 11/11: 5 sessions prolo and 3 prolo w/ PRP
*12/28/11 ESI L L4/L5 - 1/13/12 ESI R L4/L5 - 1/24/12 L SI joint capsule - 3/8/12 TPI - 3/23/12 L L5/S1 - 4/11/12 ESI caudal - 5/23/12 TPI - 7/10/12 Facet inj L3/L4, L4/L5, L5/S1
*9/12/12: 30 - DRX9000
*12/21/12 schedule. for L4/L5 fusion-CANCELLED 1/7/13
*7/16/2013: 3 level M6(S1-L3) w/ Dr. Bierstedt
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